@eshostoimarop 

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eshostoimarop

Lemtrada- here we go!

So after a less than illuminating meeting with my neurologist on the 5th I went for a chest X ray and (eventually) blood work. My JCV still wasn’t back but I was feeling really overwhelmed and didn’t know where to turn. I reached out to the nursing team and had a phone consultation yesterday. I explained I had read a lot on my options, but I felt there was no one guiding me through this process. She was sympathetic and said she’d chase the nurse for my borough to get in touch- there’s now a phone appt with her set for late May. I explained I was keen on Lemtrada for a number of reasons, and she managed to book me in for round 1 in late June. Call me crazy but when your lifelong, aggressive disease is announced to you by letter, managed via telephone calls and appointments you have to initiate yourself, and you’re left to choose from a selection of pretty scary drugs without any help it’s bloody hard. All that aside, if anyone has any advice on preparing to start Lemtrada or managing your immune compromised status afterwards I’d love to hear!
@laurabug

I have just had my third round of lemtrada. I shared my experience in a post which I updated this week if you want to have a look. I am a lemtrada fan overall and know a few people that have had great experiences of it