Confused?????
Hi, me again! Well I finally had a private consultation with a Neuro last night and to say that I am left with more confusion is an understatement??? I have had an MRI which showed lesions and a LP which showed I have the band thingy’s, sorry not sure what there called?
I still have symptoms which started about August last year and have not really gone away but consultant said he couldn’t say for definite if I had MS? He said as I have only had 1 episode then it’s difficult to say? But it was highly likely that it was?
I now have to wait to see the NHS neuro in June.
Feeling really fed up with it all :((
@dmt727 , I can understand your frustration. The diagnosis of MS has very strict criteria, although there are recommendations to revise these. However, at present, you don't fit the "multiple" part of Multiple Sclerosis, having had just one episode. Your situation is sometime referred to as Clinically Isolated Syndrome (CIS). CIS may progress to MS, or it may not. Just be aware that any new symptoms may indicate progression and should be reported. There's some details about CIS here :- https://www.mstrust.org.uk/a-z/clinically-isolated-syndrome-cis
Hello @dmt727. I also ever had one initial onset in August 2016 and my symptoms have never gone away,although I recovered from the feeling dreadful/fatigued etc. I had an MRI and a LP which also showed band thingy’s and was give an RRMS diagnosisfollowing this initial onset attack. Oddly enough, although my initial MRI and consultation was also private whilst waiting for the NHS referral, I was actually advised by the private neuro that I would be better-placed to proceed through NHS, not least because my hospital has a massive and work class Nero department. Since then, the NHS has provided a faultless service and I feel well supported. It’s just the initial phase, the waiting game would have taken so much longer with NHS which is such a pity, but what we all face. June is only 2 months, so it’s not too bad. That gives you time to continue to focus on your recovery, keep a diary of symptoms, and keep on Shifting! X So, it may be CIS with you, or may not even be MS.