@croydepixie 

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croydepixie

Diagnosis.Military.Children.Treatment?

It's been a whirlwind... August 2015....Mother is numb down her left side, I take her to the GP as it's weird. She's diagnosed with MS after a couple of weeks (what is this thing, we have no idea, quick google, oh right great) March 2016....We all go on a family holiday and after a swim I'm numb down my left side. I'm in the military, Royal Navy and happy to ignore but after a few weeks of no improvement and an imminent deployment I thought well lets go make a young military medical assistants day with some weird numbness. March 2017....Shift on a year....2 spine MRI's, 1 head MRI, multiplie lesions, numbness on the left that recovered, shooting pain in face that recovered and BANG 1 week before my wedding I'm diagnosed with RRMS! I'm a serving military 26 year old, used to cracking on and having a plan for my life. Despite the lesions, symptoms and diagnosis I still feel like I did 5 years ago (albeit a bit older!) My husband is also serving military so time to plan to have/try to have children and have treatment is limited. I have a couple of broad questions that I'd love to open to the floor.... We're between discussing Lemtrada and Techfidera with my Neuro Consultant (Bristol) is it too soon to go for the hard stuff based on my lack (thankfully) of symptoms or should we just crack on, put off children for 2 years and go for lemtrada (if consultant approved)? With lemtrada how much home support is needed? My husband is about to deploy for 6 months...if I started treatment would I be moving back home with my parents?! Closest family is them at 2.5 hours drive away. I would massively appreciate any help. We don't even know where to start. There is probably a lot of things we haven't even thought of ;)
@merfield

What a dreadful series of events. All I can offer is sympathy as I'm not on any medication. Hopefully someone else who is on Lemtrada or Techfidera can be more helpful.

@Ashory

You'll get many many opinions on this site, some of them stronger than others. I implore you to please, please do your own research before making any decisions and talk with your Drs about all options and where you are with your life. That being said I am in a similar place in life as you are working planning for the future, kids... I was diagnosed about 14 months ago and am due for my second round of Lemtrada in a few weeks. I based my decisions on the following. 1. It was the most effective treatment available to me at the time. I had just suffered a relaps that left l me with no feeling from the waist down and I knew I wanted to hit this hard and fast. 2. MS symptoms, so you're numbness, are as a result of damage that has already been done. At this time there are 0 MS drugs that can reverse this damage but many drugs that can slow or stop Further damage which is important to avoiding further symptoms. So In my mind it was better to hit it as hard as possible as soon as possible to avoid as much damage as possible. 3. Risk vs reward. All of the MS drugs can carry some pretty significant potential side effects including Lemtrada but Lemtrada carried the most promising results so if I was going to risk any of the side effects it needed to be for good reason. 4. Impact on lifestyle. I was not interested in daily tablets/injections for the rest of my life or monthly infusions. Lemtrada offered the opportunity to take 6 weeks of my life and hopefully I'll not have to worry about treatment for a long time. To me there's no better option because I know I'd forget to take my tablets or injections or they'd get in the way of my life by having to plan around them. With Lemtrada I do have to plan around monthly blood tests but they're quick and generally if I'm a few days late/early it's not a huge deal. 5. Most family friendly. I was advised by my neuro that he prefers Lemtrada for women of our age because it is the most suitable for pregnancy. As long as we wait until 3 months after a dose we are able to safely fall pregnant without having to stop treatment. My first treatment took 1 week and had me out of work for a further 2. I then returned to work full time and was ok gradually getting better. The type of Job you have will impact significantly on your return. If it's quite physical it will take you longer. I had my partner to help me through the weeks I was home but he did maintain his full time job so I'm fairly confident with careful planning you wouldn't have to move back to your parents but it might be nice for a few weeks. If you are only a day patient at the hospital and not admitted overnight you'll need someone to drive you to and from the hospital for each of the 5 days of treatment. Good luck!