@brinkclm 

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brinkclm

Spouse of MS

Hi all. My husband was diagnosed in April with Relapsing remitting MS. We have the 6mo MRI and meeting coming up in a few days to see if there has been any progression. We are both quite nervous to hear the results. Any advice on supporting a spouse through MS and before anxiety provoking appts?
@Coffeemug

What really helps is a team attitude. "We got this," "We will continue to fight and get better," "I am with you all the way in this process." These types of support mean a lot to me personally...and it really helps.

@Greens10ms

Preparation! Look through notes on the original diagnosis and mri scan from the neurologist. Discuss together. Sometimes it’s easier for the carer or spouse to do this if the person with MS is very anxious. And being clear on what the first mri flagged up so you can see where you are now, with the next mri results when you meet the team. Write your questions down beforehand. Ask on behalf of / for your husband if you feel questions are not being clearly answered or you want alternatives in care/ medication. Don’t be afraid to ask questions again until you understand the answers. Get emails or mobiles to text the team for future queries. And an emergency number of helpful / out of hours for when you need it. Write notes afterwards or record on your phone. All the best .

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