Relapses..
...how do you know when your in a relapse and when one finishes?
Also how likely is it a relapse will come on suddenly and your legs will stop working or youll wake with paralysis/ no sight in an eye. Or is it more sutle?
Just trying to get my head round what to expect and put some plans in place etc
I'm not sure it's the same for everyone but my relapses come on gradually but definitely noticeable. I have to ask 'is this a relapse or something else?' Then they escalate over the next week or so then linger for several more weeks. That has been my pattern for many years However I will say I've had my leg just give out for no reason suddenly. But as usual I always want to blame it on something else so I go to the GP just in case.
Every relapse I have had has been different. I have had them come on gradually with something minor that has escalated to more severity over the course of a month. I have woken up with TN or it is a minor relapse that I barely even noticed hit me like my speech, cognition etc. My leg has just given out while going down stairs which resulted in me falling down them, I don't take my hand off the banister anymore 😉. The falling down I would pen down to past damage due to a bad relapse with Vertigo and a brainstem lesion. I find that if you try to live relatively stress free, get your sleep that you can kind of keep the monster at bay.