@Taraghk

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Taraghk

Fatigue 😴😴😴

Hi everyone πŸ‘‹πŸ‘‹, I was diagnosed with rrms in 2008 ups and downs since then but generally have had good quality of life until about 3 months ago when chronic chronic chronic fatigue hit. Atm I'm waiting for an mri and to see an OT to try and manage things. Just wondering if any of u have found anything that helps get through the days. Currently off on sick from work. I also have a 22month old son πŸ₯°

AmySimpson

@AmySimpson

Hey @taraghk - I wish I could give you an answer that will work 100% - unfortunately I can't. I could only suggest, maybe reflect on changes in your environment 3 months ago - stress/anxiety has an impact on fatigue *Ahem* COVID world perhaps? I personally use a supplement from Holland and Barrett 'B-100 Vitamin B complex Timed release'. I adjusted my exercise to walking every day and weight lighting 5x5 gym routine every other day. What worked the best for me was the online fatigue course on the MS society website - opened my eyes to a lot - https://www.mssociety.org.uk/about-ms/signs-and-symptoms/fatigue/managing-fatigue/online-fatigue-management-course - I manage my fatigue extremely well these days. I do what I can, I delete what I don't need to do and I delegate where possible - Good luck lovely. OT's are fab with helping fatigue :-) <3 xo

Taraghk

@Taraghk

@amysimpson thank u so much for ur suggestions ❀️❀️ horrible covid world πŸ™„ must have a look for that supplement and defo into the online fatigue course πŸ€”πŸ€”. Yea can't wait to c d OT so hopefully that will b sorted soon. Thanks again keep safe xx

Clary

@Clary

A 22 month old will keep you very busy. Fatigue is definitely very debilitating. I have a couple of hours sleep a day, most days and my kids are at school. If you can get child care so you are able to rest I would certainly recommend it. If not, rest when your Son rests. Leave the dishes cleaning etc. Good luck and I hope you get some rest.

Taraghk

@Taraghk

@clary he defo keeps me on my toes alright πŸ˜‚πŸ˜‚ im lookin into sending him to creche once a week atm and my mum takes him once a week for d day which is good to rest and chill out. He naps for 2hrs a day which I'm learning to use as rest time now an not to b cleaning, trying to use "the spoon theory" 😊😊. Thanks so much for ur suggestions ❀️

simone2

@simone2

Hi i find eating small meals in the day really helps me otherwise i feel so fatigue i feel drugged but everyone is different, i also went on a gluten free diet which helped my fatigue so much also i can feel terrible but then go out in the fresh air and have some exercise and it seems to wake me up, hope you find something what works for you i think fatigue is one of the most worst symptoms of ms

Cheryl1234

@Cheryl1234

Fatigue is horrible. I’ve been diagnosed 21 yrs and the only thing that I found that works is sleep. I exercise and changed my diet but found a couple of hours sleep is the only thing that works ..

Tracey1982

@Tracey1982

Fatigue been on and off when my symptoms get worse I definitely sleep more. Was only diagnosed last year so I’m still learning best way to deal with things. Stress also a factor even if you don’t feel stressed πŸ€·β€β™€οΈ hopefully it will pass and get better 😘

watsoncraig

@watsoncraig

Hi @taraghk πŸ‘‹ I take Amantadine for fatigue and once I played with the times I take it, twice a day, it works well

Taraghk

@Taraghk

Thanks everyone for ur comments and advice. Newly joined to shift.ms and it's great to have a support network to chat with ❀️❀️❀️