Starting tecfidera
Hi all
I'm newly diagnosed and I start tecfidera tomorrow 😬 I'm not going to lie, I'm terrified. There's so many mixed experiences for different people it's hard to settle my feelings if being so scared about all this. Does starting treatment help with the fatigue? Or is it just to stop relapes? I just want to feel so what normal again! I'm tired all the time (I do work some night shifts and have a disabled nearly 9 year old so it's hard not to be naturally tired) I've numbness in 1 thigh, pains in my legs. We go to disney florida in October and I just want things to start looking up before we go on a holiday of a life time! Any tips that help people just get by day to day would be so helpful. Thank you
When I started techfidera I had been warned about side effects so was worried but didn’t have any… it was ok x
Funnily enough I just created a post about my own weird side effects with Tecfidera. Regardless, I really don't think there's anything to be scared of. The worst I heart are gastro problems - if they are persistent you will probably switch the DMT - that's not the end of the world (and I didn't experience any). You'll get used to the flushing, or not get that at all after a while. You will also need to get your blood checked regularly (every 6-8 weeks for me) but that's also manageable. I don't know if it will help your fatigue but there's also a chance this will improve by itself. There's a lot of stress from the diagnosis weakening you and if you also got steroid therapy that will also mess with you for a while. I could barely walk stairs after my diagnosis (and the related hospital stay) but got back to where I can go for runs multiple times a week. Good luck!