@Sternschnuppe 

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Sternschnuppe

Really, MS?!?

I was diagnosed with MS in March this year. However, my medical history goes back to 1997. Back then, I was diagnosed with Uveitis. Ever since then my doctors suspect that I might have MS, but MRI and other test results have always been negative. Mid-2011 I saw double. Again MRI and other tests, but still no evidence but indications were getting stronger. This year (2014) in February, I had strange sensations in the right side of my body, in my fingers first, then hand, then arm, later leg and so forth, every day a little more. My doctor sent me to the hospital, another MRI and tests and, for the first time, a lumbar puncture. And there it was, the evidence that I have MS. After the diagosis I was given a cortisone pulse-therapy and released a few days later with the recommendation to begin a basic treatment with Betaferon or the like. I have not begun with any treatment yet. I actually feel bettern than even months before my latest "attack". Now I realise what other symptoms I had before and they are all gone. Sometimes I think I feel something strange in my fingers but it is nothing in comparison with what I have felt in February/March. And - is it really a strange sensation or is it my mind playing tricks on me because I observe my body more anxiously now? Sometimes I think it cannot be MS. I feel too good now, no problems with my body at all. But then there are the test results, the lumbar puncture... Then I get scared, when I think about what might happen to me in the future. You see why I am rather skeptical when it comes to basic treatments. When I have an "attack" every couple of years - is it necessary to take such strong medication? I have already talked to my doctor about Tecfidera. A few years back I have had a treatment against Uveitis with Fumaderm, which has a similar active ingredient (dimethyl fumarate), and I tolerated it very well. But still - do I really need this yet? Does anyony know how I am feeling? Sometimes I pity myself, then again I feel like a fraud when I read about other MS patients because nothing really bad has happend to me yet. I will be happy about any comments!
@DJDsouza

If you have had an MRI scan where a consultant can spot multiple lesions on your brain, then you have MS. The symptoms you have depends on what type of MS you have, relapsing/remitting, progressive or the one which you probably have, whose name i can't remember ;)

@Tabbycat

I could not believe my diagnosis either, as my pattern of attacks did not seem like anything I had heard and I had learnt to cope with all my residual symptoms. However my Mri test and lumber puncture were conclusive and the more deeply I have read about MS, the more I recognize myself. I also realise that things are getting slowly worse and I wish I had started DMD a earlier. I really do know how hard it is to accept. I spent a year fighting it with second opinions, the works, but now I have accepted it and am very pleased to be taking gylenia, which has zero side effects ( for me). Do some more reading on good web sites and keep asking questions, but my personal advise is don't put off starting a DMD. best wishes