New Treatment
I have just be offered to have Lemtrada just wondered if any one has had this treatment and what do they think about it.
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Hi @southern, I was just going to look for Lemtrada related chat on here. I am now 2 weeks post round 1 of Lemtrada. I started on 5th of June and it went well. I did not really get much of the definite rash at day 3 and when I did at day 4 it cleared quickly. They was doing I.V paracetamol and Piriton first and last each day though so that probably helped with side effects. Now 2 weeks later I am only finding I am still really tired. When I feel okay I do something and I don;t manage much before being super tired again. I joined a really good group on Facebook for others considering and having this treatment and am finding that really helpful. I have also found many blogs to read and watch from those who have had treatment that are helpful too. I am happy to share links for them but not sure on posting links direct here. Good luck with your decision on this.
I started with Lemtrada in 2015 and had my second dose last year. It is a very powerful and effective drug, although the second dose in my case didnt have the same positive effect as the first one, but hey we are all different so i believe and hope that youll have more luck with both doses. good luck and stay positive