@Sophia25

Last reply

Sophia25

Low Fat Diets for Treatment of MS!?

Hi All, I just wondered if anyone is attempting to or is controlling their MS through dietary changes?? I have been reading Roy Laver Swank and Barbara Brewer Dugans book "The Multiple Sclerosis Diet Book." The diet essentially encourages you to avoid animal fats, almost no dairy and replace it with healthy and natural oils from fish, nuts and other replacements. Any thoughts or experiences welcome.... Thanks!

Stumbler

@Stumbler

There are a fair number of our members that are trying, or have adopted, a specific diet. It can be quiet around here at weekends, but you should get some views fairly shortly and some good advice too.

highheeledfagin

@highheeledfagin

I've read about it but decided it wasn't for me. Yoghurt is good for my digestion, I'm prone to anaemia if I go for a few weeks without meat, and I'm prediabetic so have had to lower carbs and slightly raise fats. When I was diagnosed, the consultant nurse gave me some tips that seem to be covered by what you're talking about: lower animal fats, increased fish and omega oils, nuts and blueberries. A healthier diet is a good thing to do anyway, particularly if you're already contending with a chronic illness, but it usually involves a bit of trial and error and seeing what works for you. I'm not sure that I believe that diet will control MS, but there are definitely changes that can help.

reddivine

@reddivine

Personally i don't see how diet is a cure for MS. HOWEVER a healthy diet is better for your overall health, which can have a knock on effect. Lower weight, better skin, less toxins in the body...who's gonna argue with that? But a cure? Give us a break.

Sophia25

@Sophia25

Thank you for your feedback. Its good to get an idea for what is and isn't working for others. By no means am i under any illusion that this is a cure but i am someone who likes to maintain some control over my life and i am going to try getting some of that back with healthy eating and exercise... like you say it cant hurt. I will also read up the MS diets for women, thanks for the heads up Maggie. S

Cazzzzzy

@Cazzzzzy

Hi @Sophia25 ... Yes I am following my diet and would never go back... Excluding the foods @maggie mentioned my fatigue has lifted and constant tingling in my feet has gone along with pains in the back of my head, my eyesight is also better and eye pains have gone, I have experienced so many improvements excluding these food types! ... I am not expecting a cure but truly believe that it's possible to slow or even halt progression if you avoid certain foods that cause inflammation etc ... I am so glad I gave diet a shot and good luck if you give it a go, like Maggie says it has made a HUGE difference for the better with me :) There are lots of books out there - the one that opened my eyes and motivated me was "MS Recovery Diet" xxx

Sophia25

@Sophia25

This is good to hear @cazzzzy. I have found the MS diet book a bit hard work to be honest so I will definitely have a look at the MS recovery diet. thanks! Take care x

jenko1972

@jenko1972

Hi I've been on the Swank diet for about 2 and a bit years. My walking is very wobbly now. I cannot say if its done nothing or slowed everything down, I'm never gonna know. Anyway it certainly has not done me any harm so I will stay on it till I die. It is quite easy for me to stick to now biscuits etc no longer bother me, although I must be honest posters for Double Cheeseburgers at the bus stop cause me to look twice. anyway, take care, I hope any diet you choose helps. neil

joemartinuk

@joemartinuk

Has anyone tried the Dr Terry Wahls diet? I watched her TED talk but when I read about the diet it said when combined with exercise. I already exercise and have a pretty healthy diet so am not sure if taking out gluten and dairy will do any good. I think like most diet tips each person will be different. Has anyone actually had any measurable clinical improvement or slowdown of symptoms since starting a diet?

melissag

@melissag

Recently saw a dr who recommended I try one called the paleo diet. You pretty much eat like a caveman! No dairy or grains and lots of fish and organic meats. It sounds a bit tough to be honest but I'm considering reading the book about how it's supposed to help neurological diseases called "the grain brain". Interesting theory but I'm a bit scared to do it. I'm half Italian and simply cannot live without a bowl of pasta every now and then!

joemartinuk

@joemartinuk

Thanks @maggie - think I might follow your advice for a few months and see if I notice any change. Living without cheese is going to be tough!

melissag

@melissag

@maggie corn pasta sounds interesting. I think I'm going to try the paleo diet for a couple of weeks and see how I feel about it then maybe just adjust it to my own. Some things don't make sense to me to cut out, like legumes, I don't see how a nice mixed bean salad is unhealthy! I'd probably add those types of things back in

melissag

@melissag

@maggie that's interesting, I never would have thought beans could cause something like that. I guess I have a lot to learn! I will have to try out a food diary with all of this as well, thanks for the tip!

Sophia25

@Sophia25

Thanks to you all for your response on the matter... plenty of food for thought here (excuse the pun). @maggie thank you for sharing your experience i have found it particularly inspiring how you managed to turn your quality of life around with a more controlled diet. Thanks all... x

EmmaW

@EmmaW

@Sophia25 how have you been getting on? I'm looking into following a specific diet and am currently gathering information about it all. What diet have you followed and how is it working out for you? Thanks to @maggie for directing me here and all the info you have shared

melissag

@melissag

Hey @EmmaW if you're interested, the one I'm doing is not exactly the paleo diet like I had thought, it was recommended to me to read a book called "the grain brain" by a neurologist named Dr. Perlmutter. I thought it was about how the paleo diet was supposed to be helpful, but the diet he talks about in his book is slightly different. Only been doing it just over a week now, but it's interesting to hear how he really believes carbs are causing a lot of neurological problems. We'll see!

Cazzzzzy

@Cazzzzzy

Hi @melissa.g ! ... That book sounds interesting, I'll try and get that one! ... I think the less grains the better, I only eat corn pasta now and corn cakes but I do want to stop them altogether eventually... Also the ketogenic diet has been proven to help epilepsy in children, I think it will just be a matter of time before the importance of diet and avoiding food types is researched further... :) xxx

melissag

@melissag

@Cazzzzzy Its an interesting read. I really skimmed through some of it, because a lot of it made it seem like I could have almost avoided getting MS if I hadnt had carbs my whole life, which I dont really find helpful, but the overall idea makes sense. Im just hoping to actually feel some relief on a day to day basis. If so I will definitely be sticking to it long term! Corn is not allowed on this one, but you can have some quinoa or rice sometimes, so thats been helping me transition to not having any sort of starches with meals. It takes some getting used to! Havent head of the ketogenic one, but I'm really starting to believe that diet plays a stronger role in controlling symptoms then a lot of people say. Officially the MS society in Canada doesnt recognize any diet having an impact on MS, but you're right that they probably just havent researched it enough!

Cazzzzzy

@Cazzzzzy

Hi @melissa.g ! ... Yes I know what you mean, I get annoyed with my doctors for not listening for years, had I been diagnosed when I should have been I would have learnt all about diet then and could have slowed progression... Anyway yes diet will help, it will most probably take a good few weeks to really start noticing benefits ... & uh-oh - not so great to hear about corn but I could live with quinoa, I keep meaning to try a complete grain free fortnight to see if I notice any more improvements, I must be strong and give in to corn pasta and corn cakes :? :) xxx

melissag

@melissag

@Cazzzzzy A friend of mine with celiac disease told me there are some great rice pastas out there, so that might be good to replace your corn pasta! Haven't gotten any yet but plan to look for some my next time out shopping. Good luck!

Cazzzzzy

@Cazzzzzy

Thanks @melissa.g ! ... I will give the rice pasta a try, I found some here, http://www.dovesfarm.co.uk/ ...This is a UK site and I can get the maize and rice mix pasta in the shop near me but I will send off for the rice pasta and I must get that book soon! Hope you manage to find some too :) .... Does the book also recommend cutting out dairy and other food types? Thank you :) xxx

melissag

@melissag

@Cazzzzzy dairy is okay! in moderation. splash of milk in your tea, or some cheese is okay with him. legumes in moderation, and no sugars. Ive been using something called coconut sugar, which is natural and comes from coconut sap, I dont know if this is technically allowed but it is to me, hehe! Oh one other thing, he says not to eat veggies that grow under ground. so no potatoes, etc. Carrots and parsnips in moderation. Its a bit confusing, but weirdly enough I just heard this Dr. Perlmutter was on that Dr. Oz show thats on in north america, not sure if you guys have it there. he spoke a little about the diet, they focused mostly on how it is supposed to help prevent alzheimers, and he just gave the basics, but he speaks more in depth about it in his book. heres a link to the episode, im not sure if it will work in the UK but worth a shot! He explains the diet in part 2. http://www.doctoroz.com/episode/do-carbs-cause-alzheimers

Cazzzzzy

@Cazzzzzy

Thanks @melissa.g ! :) ... I've heard about avoiding veggies that grow underground before, but I do think in moderation is ok with that one, a healthy variety of the right foods is so important... I don't think we get the Dr. Oz show here but I just watched the clip (thanks for that!)... Seeing those differences in the brains is worrying with Alzheimers :? ... For me I need to avoid fruit as any type of sugars makes my symptoms so much worse and it really weighs me down!... I like Dr. Perlmutters theories and I agree with what he says, also my herbalist is always recommending her patients to stay away from carbs and from what I've researched it makes sense... I just wish I'd learnt all about this a few years ago :) Thank you :) xxx

Sophia25

@Sophia25

Hi @EmmaW, i have to be honest it could be more successful, I'm finding the practical application of it all quite hard.. I think i have been attempting to do too many bits of too many diets and i need to just focus it all on what i need and try again. How are you getting on? which diet have you chosen to follow? S

hollylb10

@hollylb10

Hi everyone I have come off Tecfidera - the poison that has supressed me for 2 years! My husband has noticed a huge difference in my mood, I am much happier and even feel healthier! Anyway, I changed to a gluten free vegan diet when I was first diagnosed, then when I started tec I changed to just being veggie and gluten free as much as possible. I am now looking for recommendations and positive stories please :)

Vixen

@Vixen

Hello @sophia25. I have been on the Keto diet for 4 months and it's changed my life, not necessarily the MS. I did it - begrudgingly - because I was so desperate to lose the weight I had put on since first becoming ill 18 months ago. It's a bit tricky doing high fat and low carb as I'm a veggie. But, I persevered and have lost 1.5 stone as of last week so I have reached my target. Perhaps the most amazing thing is that I've conquered my lifetime addition to sweets, crisps and chocolate. It's simply not there any more which can only be a good thing. My appetite is surpressed too. In terms of the MS itself, I can safely say I have way more energy since starting Keto. Am not needing daytime naps anymore and am managing to work full time still with no struggle in a fatigue sense. Am on Tecfidera too. For breakfast I have full fat Greek yogurt, rasp/strawberries, and crushed nuts. Evening meal includes a range of at least three or four vegetables, tofu, lentils, eggs, loads of cheese, lentils, , cauliflower rice, paneer, including in the guises of various Thai, Chinese or Indian dishes. As with the Tecfidera, I will never know if I am better, or worse off for taking it but certainly I feel pretty lively and am leading a relatively good life x

BensDad

@BensDad

I gave up smoking and only smoke 10 cigarettes a day now...lol... Ben gave up the glutin, meat, beans all types, dairy, sugar, he does not drink alcohol or smoke.Only eats anti inflammatory foods. He has been doing well and says he feels better as sometimes he felt sick or uncomfortable after eating certain foods. It has only been about a month so still early days to tell if is helping his ms. I believe diet is key, maybe not a cure, but who knows?The earlier you start the better and it’s a bit like a dog, for life, not just Christmas.

potter

@potter

I had two aunts that had MS before there was any DMT's and they both tried the Swank diet, neither of them thought it made that much difference. I think most good diets make you feel better, you just don't know whats really going on inside your brain. I just had my first relapse in 10 years. Have I changed my diet or habits in the last month. NO Did I take my Tecfidera. YES. The only thing that changed was a cluster of nerves inside of my brain that caused the right side of my body to go numb. Why this happened no one really knows, my neuro said it was a mild relapse and gave me some steroids to help me get through it. I hope everyone tries to also enjoy life and and not focus to much on the what ifs in life. Potter

highflyingbird

@highflyingbird

i cannot comment on any of the opinions above but i can tell u i have tried all diets that is recommended and my findings are this. if a person feels a particular diet is controlling their MS then is is the diet or is it the person feeling their in control - which is a big factor in MS. no diet has helped me and if i am to be honest some have made me weaker and i lost up to 3 stone on others. as i got weaker i blamed the MS but as soon as i started eating a healthy diet again (meat, dairy, gluten) i regained my strength and actually went beyond - as my gym workouts proved..... so i think find what works for you.. as a very knowledgeable and medical person once said to me as i was loosing alot of weight........do you feel sick after eating a piece of dairy or gluten or meat within one hour after consumption..........I said no..........They said "your fine it not doing you any harm" People will though stats at me and say this that and the other but i have went through the trenches and in my opinion its about the person believing in a diet as part of trying to control it. if diet were the answer we would be cured now. unfortunately food is the common denominator when it comes to all illnesses and its a good market to point the finger at............... just my opinion but i am sure others know more about it...............stay strong my friend we will get out of the trenches some day................