@Ocrelizumab (Ocrevus) on Shift.ms

Ocrelizumab (Ocrevus)

I’m just wondering how peoples experiences have been on Ocrevus? I’ve been diagnosed with RRMS since 2015 & for just over the past year been on Copaxone injections due to relapses. Had a recent brain & spine MRI following 2 relapses during the last year & my consultant now wants me to move onto an infusion. I’m hopefully at the end of my second relapse which has lasted about 7 weeks. I’m nervous about moving to an infusion & generally down to hear my MS has progressed. I’m 29 & feel like it’s progressed quicker than i thought over the past 2 years. I hate how we have no control over MS!!

I was Dx in 2005 and initially on Copaxone because that was about all there was. I continued to have an attack every couple of years and continued progression. Maybe it helped some. It helps in about 30% of cases for all the pain and damage it did to my injection sites, etc. I was moved to rebif and never really got over the flu like feeling but no relapses and then on to Ocrevus when my Dr trusted it as it had enough time on the market. No progression since then it seems or at least slowed and I have moved to a SPMS classification. I didn't realize how much I dreaded "injection night" until I no longer had to do it and by contrast I look forward to the twice a year "infusion day" where I hang out at the infusion center with snacks and my laptop and give myself permission to have snacks and doodle on my laptop instead of work and know I don't need to think about treating my MS for another 6 months! As far as effectiveness of the two and the other options hit the Dr Boster You Tube site and put in "Role for Copaxone" and "Most efffective" as search request in the treatment group. He has review about just about every options and comparisons for effectiveness, how they each work, etc. There is also an Ocrevus FB group people post into with questions, comments and the obligatory photo of actually getting your infusion. You'll be in good company and in good care-