@Sarah_T

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Sarah_T

How do you know if its optic neuritis?

Hi I have RRMS but I've never had optic neuritis but since Monday vision has been blurry in my right eye and I've had a weird headache behind my right eye. The kind thats fine if I keep my head still but if I bend down it really hurts. I've been keeping the headache at bay with paracetamol 3 times a day and I can cope with the blurry vision day to day but not so much at work. I work in IT and am struggling to with focusing on my screen. Its like there is a blurry mesh over my eyes, like I have a load of gunk in them. I work part-time so its not too bad at the moment. I've been for an eye test and they said my eyes are slightly short-sighted but not bad enough to need glasses and they wouldn't help me working with computers anyway. I didn't mention MS to the opticions (it was Specsavers... and a bit conveyer-belt like). What do you think? Should I just call my MS nurse or am I being paranoid?

holly12345

@holly12345

Hi there Def call your MS nurse, I'm not a clinician but it does sound like optic neuritis, a very common symptom in MS. I unfortunately have it in both eyes, left over from a nasty relapse last year. Keep well Rebecca x

Stumbler

@Stumbler

@Sarah_T , here's a good website that describes Optic Neuritis:- http://www.mult-sclerosis.org/opticneuritis.html Opticians can usually see neurological issues during an eye test, but if you were on the Specsaver's conveyor belt............ I agree with @holly12345 about contacting your MS Nurse. If they agree that this is indicative of a relapse, then High Dosage Steroids may be offered to try and correct these problems. Steroids are usually considered for high impact symptoms, e.g. vision problems, mobility problems, etc.

Sarah_T

@Sarah_T

@stumbler & @holly12345 Thanks for your reponse. Stumbler, that website is really good, it explains it in simple English with pictures! Rebecca, sorry you have it in both eyes, do you think it will get better, or is that the big unknown question? as is often the case with MS. I think I may wait until after the bank holiday weekend and then get in touch with my MS Nurse. Thanks again Sarah

Stumbler

@Stumbler

Make sure you take it easy and rest up over this weekend, @Sarah_T. Your body needs to be allowed to try to recover. :wink:

Hels99

@Hels99

This probably isn't helpful in terms of of optic neuritis but in terms of opticians I went to Boots Opticians the other week and found them really helpful and knowledgeable about MS (they did keep me there for two hours for extra checks but I definitely felt looked after). I've since developed Nystagmus and when I went back to order my new specs they advised me to hold off on the distance glasses to see if it goes away. Much better than the usual 'buy everything now' advice.

Avengr13

@Avengr13

Hi @Sarah_T! I have had optic neuritis a few times over my 30 years with m.s An opthamologist has a medical degree and will know more than an optometrist. You may want to see a doctor for more information. I likened my o.n. to a black veil over my eye or eyes. It was usually worst at twilight and daybreak. No headaches but for a while I had a very difficult time. I have not had an episode for many years but when my eye doctor looks at the back of my eye, they can see residual damage. And if I press gently on that eye socket I can feel an ache. Sorry I am so wordy but I wish I had this site when I was going through all of my problems.

Sarah_T

@Sarah_T

Thank you all for your comments. I did call my MS nurse on Tuesday but as they take a couple of days to get back to me I booked another opticians appointment at boots. They were so thorough and such a completely different experience to specsavers. The optician wanted me to see an opthamologist but as it was getting late in the day 5.30 no one was answering at the hospital so he sent me to A&E with a letter. I was pretty panicked about it. I've never been to A&E before. By the end of the evening I had seen an opthamologist who confirmed I did have ON but as I didn't have pain he said he wouldn't give me an steriods and it would get better on its own. I've since spoken to my MS nurse who said much the same thing. So now the task is to remain positive which is fine most of the time as I'm naturally an optimistic person. The times I am struggling with is when I am at work and the computer screen is all hazy and words seem to jump around. Its getting me down that I can't do my job properly. Any hints as to how to remain positive gratefully received! xx

Stumbler

@Stumbler

@Sarah_T , if this does continue to cause problems to you, then get in contact with your MS Nurse again to have steroids prescribed. The Steroids won't immediately fix your Optic Neuritis, but it will expedite your recovery. As for you computer screen, have a word with your computer support people. The should be able to alter the contrast and screen resolution, to make it easier and less tiring for you. Some MSers have received some relief by wearing tinted glasses.

isaacson72

@isaacson72

Glad I read this thread! I don't have ON but Stumbler's comment about changing the contrast & screen resolution is a great idea for me as well. My neurologist noticed my right eye doesn't track very well, so when I'm reading things on the computer, my eyes get really tired, as apparently my eye is jumping all over the place. I end up printing everything, and have to really concentrate to digest it. I wonder if changing the screen settings will help. My eyes do seem to get blurry from time to time (I think they're just tired) and I get that headache behind my eyes as well. I saw an optometrist who used some fancy machine to look at my optic nerve, and apparently it looks fine, thank goodness. It's the MS symptom that freaks me out the most. Obviously nobody wants to lose mobility or anything that drastic, neither do I, but for me it's optic neuritis that I worry the most about. I hope yours resolves very, very quickly!!

Stumbler

@Stumbler

@isaacson72 , a lot of computer work these days is windows-based using dark letters on a bright background. This can get visually tiring so trying light letters on a dark background may be more suitable for you. :wink:

kathsue

@kathsue

Can anyone help with my eye symptoms? I don't know if they're related to ms or not. My left eye is blurry in the mornings especially and feels like there's something in it. I've had a floater in it for a few weeks and now if I go from darkness to a bright light I see thick black lines like a spider's legs in the corner of my eye. I've got an appointment at the optician on wednesday. Any ideas please?

Stumbler

@Stumbler

@kathsue , the optician should be able to see if there is any neurological damage going on. But, have a word with your MS Nurse too.

SophieShift

@SophieShift

hey @kathsue interested in what came of this? How did the appointment with your optician go? did you speak to your MS nurse?

joholl

@joholl

@sarah_t I’ve had it twice before I got diagnosed with MS last year. The last one was like a grey film over my right eye, after tests it was optic neuritis. I rested ( off work) for 5 weeks and have been well for 18 months. I’m not sure if it helps you but I totally changed my lifestyle particularly at work, My jobs stressful as everyone’s is but putting myself under less pressure helped, working the hours I’m paid and not 20 extra 😂 I’m on tec but take vitamins a b c and e. It’s very scary when you sight is distorted so completely understand how you feel. Keep positive, wishing you the best and defo call your nurse they’ll get to the bottom of it for you x

joholl

@joholl

Just realised this is an old post 😂🙈