@SSlavi 

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SSlavi

Spasticity or what?

Hi there everyone. I am having some troble cooping lately...trying to reach out to MS nurse and did not get a response for four weeks...whitch just makes me feel unbelivebly discouraged...just like giving up on even trying to get any ansvers/help.. Motivation is at its lowest. I will post the email to her here hoping someone wil have something to say abou this. Context:I had covid in mid august and a week after this big ,,flare up'' so But last week espetialy was touhgt. Lots of aches and pains plus I got my period on top of all that. Over all I hit a new low there. So these I can onely asume. ''flare ups'' aka these aches, pins and needles and tingels in my legs and arms can be very hard to describe exactly what I am feeling. At the risk of sounding overly dramatic it can feel like the life itselve is being squeezed out of my limbs. Similar to muscle pain but somehow seems deeper and in places that I can't imagine geting any sort of strain like my fingers and toes, the iner side of an elbow, arm pit or my groin. They come in these spels that can last for two weeks and then be gone for few days weeks seemingly regardless of what I do or don't do. I am usually trying to ignore theese as ''just one of the MS things'' but it is getting pretty hard as they seem to be getting stronger even giving the last one could be due to the special circumstances the lot of them is gettin to be quite concernig to me lately... What if they just keep getting worse? What if anything can I do to stop theese? Is this concidered ''normal'' for MS? Should I be looking elsewhere for couses? Thank you for reading all of that I gues I just needed to vent it somewhere aswell.
@MiSha

First off, you’re not being dramatic. You’re experiencing something that is off putting and your reaction to it is very normal. Hormones play a part in flare ups due to where they are situated in your brain and their proximity to your fight/flight response. It’s natural to have flares up during ovulation and menses. I encourage you to look at the AIP diet and avoid histamine inducing foods. To help with movement and mood regulation - you need a boost of testosterone. The easiest and most natural way is through gentle stretching (look at YouTube) and maybe a short walk. You’re doing great. It’s okay to feel scared and upset about this. I think we all are at some point. But if you just do ONE good thing for you today, that’s all you need. Gentle hugs

@SIMONA2

Hi Having ms is Dramatic! it's hard, I get loads of aches,pain and stiffness I started doing yoga/Pilates everyday which sounds mad but it's really helped with pain and spasms my mobility was really bad but now I have more strength in my legs for me exercise seems to wake me up otherwise I'm going to sleep during the day