THE BIG DUMP

I have had MS a long time. So, I’ll try to stay focused and brief. (Wish me luck😂) Many strange happenings from the age of 20. All came to be diagnosed in 1997 at age 32. I’ve taken Copaxone, Avonex, Bee stings🐝(yep),IVIG, Tysabri, and then the BIG GUN- HICY. (Which is high dose cyclophosphamide “chemo” like a bone marrow transplant - they do it for stem cell- but I did it in a study without the bone marrow or stem cell) Rebooted with a drug called Neupogen to bring white cell count back from zero. All good for 10 years….then MS symptoms creeping back. Sooo… That was 2010 when I got HICY. Only been taking LDN (low dose Naltrexone). 2020, thought I was having a heart attack! Was MS hugs in middle of chest! Who knew!!! Neuro had me change jobs-was a loan processor at a bank. Too stressful, so flipped to costumer service- LOL (you know!) So, I’ve been getting headaches off and on last 2 years. Trying to stay calm and taking a lot of Ibuprofen. Then April 7th at 2am VERTIGO! The BIG BANG kind! Crawling to the bathroom to throw up , hoping you’ll make it in time. Then trying your best to not move so you can stop the spin and breath. Sitting against the wall for hours because lying down is NOT an option! I know some of you feel what I’m saying. I have not worked since that night, haven’t driven since the day before, have to read and re read as memory is slipping. CRAZY!! Neurologist tried solumedrol 3 day to no avail. Moved me to SPMS. I am on Short term disability. Preparing for what’s next. So guilt there. Want to go to work, but no way I can do it like this. Recently heard I’m a spoonie, which makes since. I’ll be in a new study starting the drug in July- 2 out of 3 chance I’ll get the drug. Tolebrutinib Which is a BTK inhibitor. Sooo yeah. My neuro asked if I’m depressed? I don’t think I am. I am anxious,and pretty pissed that I can’t drive- because I’m dizzy and can’t feel my right foot! But I can laugh at it, because I know what it is causing it! I just appear drunk when I’m completely sober! YAY! Questions in the near future will be about the journey to social security and Medicare. I have NO CLUE! So if you’ve been there, done that, please let me know. I’m very happy to have found this community and will answer any and all questions asked of me. I’m already in love with @bullman! Laughter is the best medicine!