@Peacezone 

Last reply

Peacezone

Recent diagnosis

Hi, I'm very recently diagnosed, last month in fact. I'm 36 mum of three and soon divorced, so all of this had happened very quickly and is Very overwhelming. At the moment I have hardly any symptoms apart from numbness but I'm really scared of getting some of the symptoms and whether they will remit. I haven't seen my specialist yet as the neurologists didn't seem to think there's any hurry. I'm worried as I don't know anything about disease modifying medication, and does the relapsing-remitting MS always change into secondary progressive MS?
@Vixen

Hello @peacezone, sorry you are going through this overwhelming time at the moment. I think there are one or two folks on Shift from the IOW including me, although I don’t live there now. You’re going to have to force their hand a little, as it’s important that you get to see a neuro as soon as possible. Does the IOW have an MS nurse service? It’s important that somebody takes you through the medication options so that you can make an informed choice about whether it’s an option you choose to take. Please take it from someone who has been there, and try not to waste time worrying about what might happen, as it’s absolutely impossible to know these things. Stress and anxiety is the worst enemy of MS, and can in fact trigger a temporary worsening of symptoms, called a pseudo-exacerbation. So, you could start tomorrow by calling PALS advisory service at St Mary’s, who might be able to tell you what support is available for MS patients. It’s fortunate that you have minor symptoms, so you need to focus on maintaining a real healthy balance. There is lots of support on here for you, you can ask questions any time and everyone here will understand what you are experiencing and have concerns about. Take a deep breath, look after yourself and make a pest of yourself by getting the ball rolling with your GP/neuro xxx

@PeterFrancis

Hi Peacezone, sorry to hear of you diagnosis, feeling worried and confused is perfectly understandable and totally normal. I'm still getting my head around my diagnosis late last year of Rapid Secondary Progressive. Will you RRMS become SPMS?... Well at some stage yes but that could be in many years time depending on what treatments you will be taking that could stave off any progression. Your MS Nurse will give you all the info you require, if in any doubt always ask questions.