Tremor especially when tired
Hi, recently I developed a new symptom - I had tremors whenever I was trying to do anything so when sitting still it was fine and then when I'd go to do something like pick something up or hold a cup to my mouth or whatever my hand would start shaking. That dissipated and now only happens when I'm really tired or after doing exercise. I am guessing this is relatively normal? Is there anything I/anyone can do to improve it or do I just need to accept it and move on? (I.e. should I bother ringing the MS nurses/physio about it or not?) I am waiting (still) for an appointment with the MS nurses to discuss DMDs and have another issue to discuss at that meeting as well so I can take this to them whenever that finally comes around. My general experience so far is that my non-relapse symptoms are of very little interest to the MS nurses, especially when there's nothing they can do about it.
@nicecupoftea , unfortunately, it is quite usual for these residual symptoms to appear when we're tired, or when we fall foul of Uhthoff's Phenomenon (https://www.mstrust.org.uk/a-z/uhthoffs-phenomenon). Here's some details about this particular symptom :- https://www.mstrust.org.uk/a-z/tremor Yes, add this to your list of things to discuss with the MS Nurse, just to get this on record, if nothing else.
Thanks @stumbler - I put my Dyson fan on 10 (which is like a storm) when I do my exercise, and drink cold water throughout, but I obviously still do get hot, and then I just sit in front of the fan for 20 minutes or, if I'm in a hurry or feeling brave, squeal under a cold shower until I've cooled down. I'm still learning what can be ameliorated with little tricks/changes, or medication etc. and what can't so in a bit of a "should I/shouldn't I ring to ask about this?" I did ring the MS nurses when the tremors first started because they just suddenly happened and I didn't have a UTI (I checked) or any other sign of infection so it is at least on record that I got a new symptom, even if they had subsided after a couple of weeks when the MS nurses gave me a phone appointment! I am currently feeling the frustration of how slow appointments and results etc. are to come because I am waiting to talk about starting a DMD and it feels like forever when, in reality, it's probably not that long.