@NiceCupOfTea

Last reply

NiceCupOfTea

Amantadine for fatigue

Hey! For those of you who have fatigue I thought I'd write just to say I had fatigue that was stopping me from being able to live my life for a while and the neurologist prescribed me Amantadine, I've been taking it for 6 weeks and not had any bad side effects - the only one I had was nightmares for about a week in week 2 which were not nice but then they stopped and been fine every since. By about week 4 or 5 I found I was able to do more of the things I wanted to do as well as the things I have to do ...it's not like I am back to the way I was before MS but it has made a huge difference to me feeling like a normal person again! I have the weekends back rather than recovering from the week, and I can even manage an hour or so after work before I get too tired. What is everyone else's experience with fatigue and have you tried Amantadine?

NicciS

@NicciS

I took amantadine for a couple of months and it helped hugely with fatigue. The only side effect for me was loss of appetite which wasn't a bad thing in my case!

highheeledfagin

@highheeledfagin

It didn't work for me, I just got nauseous and dry mouth. Moving onto Modafinil really did work for me but I know that they no longer prescribe it for MS.

NiceCupOfTea

@NiceCupOfTea

How come you stopped taking it after a couple of months @niccis? That's fair enough @nutshell88, I have noticed a reduced appetite but nothing I'm worried about, have you tried anything else? Sorry to hear that @highheeledfagin I count myself lucky that I haven't had those side effects and it's helped me, these things are always so hit and miss aren't they! My neuro mentioned Modafinil and I think he would have prescribed it to me if the Amantadine didn't work but I think those decisions are very dependent on who you see when it's off licence. I'm glad the Modafinil helped you though, I was really surprised to hear there were meds to help with fatigue but very glad!

NiceCupOfTea

@NiceCupOfTea

Whatever works for you @nutshell88! I rarely drink caffeine anymore because I also get migraines and it's just not worth setting one off!

NicciS

@NicciS

@nicecupoftea I stopped because i felt less fatigued and also because i was worried about how little i was eating. I try not to take any medicine for longer than I need to- except my DMT obvs

Ironribs

@Ironribs

Hi, I found it to be very effective. I used to have to nap or 2 or 3 during the day just to get through it. When I took Amantadine after a few weeks, I would lay on the sofa as usual to have a quick nap but found I couldn’t anymore!! Had to get up and do something else. However I only remember to take meds’ when I have a problem. I soon as problem solved I forget. So now I’m off em and back to napping every chance I get! Just accepted this is how it will be now. I think I secretly enjoy a few naps lol but they are still there in the drawer if I need them.

NiceCupOfTea

@NiceCupOfTea

@nutshell88 yes I used to drink a lot of tea and coffee, and it has always been a habit especially in the workplace! I'm very glad I never started smoking because it looks like a very difficult thing to give up! Everyone reacts differently to things they eat and drink so for me caffeine is just not worth it and there are so many decaf versions of things I stick with them. @niccis that makes sense, especially if you were worried about a side effect, has the fatigue come back or are you still feeling better after stopping taking them? @ironribs If you're able to accept and you can make it okay in living your life then fair enough! I don't think I'd be able to work if I didn't have them, it was getting really hard to carry on until I got them, but now I get home from work and do about an hour of exercise!

NicciS

@NicciS

@nicecupoftea I wouldn't say I'm cured (!) but I can function now. I work a stressful full time job, about 60 hours a week, plus two kids, and I'm just about keeping going without it. To be honest, I think my life would exhaust anyone so I guess I'm doing OK! I nap when I can, try to relax fully when I've got some down time and things are going OK at the moment, fingers crossed.

NiceCupOfTea

@NiceCupOfTea

Really glad to hear you are managing to keep up with so much @niccis! Sounds like you dodged a bullet there a bit @nutshell88, I've heard about weed helping with MS too, but I think there are other options to try first - and there are other ways of taking it without smoking!

NiceCupOfTea

@NiceCupOfTea

Happens to the best of us @nutshell88!