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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

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Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

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@MustStopMS 

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MustStopMS

What has helped you the most?

Which of these would you say helps the most with managing your MS? 1 - Diet 2 - DMD Treatments 3 - Exercise 4 - Other Please Elaborate. For me I would say Treatments. I am on Gilenya and have not had a relapse. I do feel great after exercising, but i hesitate to state that one because i have yet to maintain a consistent routine.
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@cameron
@cameron
 

1 DMD. Copaxone seems to have stopped the inflammation. 2 Excellent neuro/MS nurse support, including the Monday to Friday phone-in service. It helps that my neuro is an MS specialist and involved in research. I trust him 100%. 3 Monthly neurophysiotherapy. I have a really excellent physio and for a long time I got this on the NHS, sadly no longer. 4 Weekly hydrotherapy. This is physio in water and I can't recommend it enough 5 FES clinic at Salisbury Hospital. I used an FES device for c.7 years. The clinic has a superb physio there who really helped me. (Will give details if anyone is interested). 6 Sympathetic GPs. I've been lucky and they've all been willing to hear me out and support me. 7 Thanks to the above interventions, I've been able to a)develop and sustain a good exercise regime and b) deal with MS issues before they became huge issues. In case this all sounds a bit cosy, I should say that my early MS experience with another neuro team was awful. If it hadn't been for the GPs, I'd still be with the original lot.

@bamelia
@bamelia
 

I would say 4 & 3 in order of importance. Other being all the people I have as a support group. My family and friends (in the flesh and online!) I think Shift MS is a HUGE help with questions and all around better well being. I think exercise has helped me keep focused. I'm sure the endorphins help too :)