@Muffie 

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Muffie

Daily symptoms - every day

Can someone help me? I’ve searched the web and all the MS sites and can’t find the answer. I would like to hear from someone who has symptoms daily that come and go. Like everyday. For instance I permanently have numb feet but sometimes in the day it travels up to my knees then goes away back to just the feet. I have tingling buzzing in my legs that is there all the time but increases depending on what kind of day I’m having. Ants in my limbs come and go during the day. Balance varies each day. Aching muscles each day but a variety of different muscles. This is every day without question. Pain, buzzing, breathless each and every day. Whenever I google it all I can find is ‘people have relapses periods with no symptoms’ and ‘progressive which is where people slowly get worse’. I think I’m falling in that camp and the neuro end of last year put me on Ocrevus to try and halt progression. But with the daily symptoms it means I can’t plan a thing unless I get dosed up on lyrica and baclofen. Anyone? Judy
@KateB

@muffie, yes I have symptoms every day which can come and go, I really don't understand this relapse thing. My neuro tells me to put it in my blue file, but I really want to live my life, and not spend the whole day writing about every little symptom! I have numb feet most of the time, I get breathless too, is that a symptom of MS? I never knew that. I also get vertigo alot. And I often get stiff aching muscles when I have not done much to merit it.

@Muffie

Hi there Ketab well you sound identical to me. What have you been diagnosed with? I have one lesion in my neck which is classed as solitary sclerosis and that tends to mimic primary progressive apparently so I’m used to not having relapses, but the ongoing daily symptoms are a real bummer aren’t they? Every day at different times they appear so do you find there are two choices of stay medicated all day just in case anything appears and not knowing when it’s going to come on OR take something at the time of ‘appearance’. Then feel rubbish for a time as the meds kick in. Not much of an option to choose from is it? But at least there is something to take looking on the bright side 🙄😁 Judy