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@Muffie 

Last reply

Muffie

Balance, vertigo, eyes to the right!

Hi everyone, can anyone give me some advice or has this happened to you. Background - Diagnosed ms 2015 ocrevus infusion therapy. So I’ve had extra balance problems and vertigo for about ,5 days. It’s stopped me going out but can move around the house grabbing on to furniture for support. I’m due my ocrevus infusion but it’s been delayed due to the pandemic. I’m about a month behind so put my increased symptoms down to the delay. Yesterday afternoon my balance deteriorated and the room was tilting so slowed down. And it just got worse and worse. Over a few hours my focus was always going to the right and peripheral vision swirling all around the edges. Took 100 lyrica, baclofen went to bed woke at 5 boiling hot and was really sick (sorry). I woke up this morning much improved. Balance still off but no vertigo. Eyes still wanting to move to the right when I look at something. weird eh? Any thoughts? I think I’ll break open the steroids just to be sure but just wanted to check to see if this is a known problem. Last night was frightening. I wondered if I’d had a stroke. This morning I’m just relieved I’ve improved. MS isn’t it just peachy?....?
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@Clary
@Clary
 

Hi, sounds what you are experiencing is not nice at all. I can’t say I have the same, but I have balance issues, which I don’t think are ever going away 😢. I feel like I am on a ship. I grab furniture most of the time. Changing direction and position make it worse for me. I have been told physio might be needed by my clinicians, but in the meantime I have been advised to improve my core stability. I am currently trying to buff my abs 😂. Balance exercises and planks for me. Good abs for the summer, here I come 😆. I guess speaking to your MS team if things don’t improve after steroids is all I can say. Sorry to say my advice and experience is quite limited. I hope you can find a way to improve things 🤞.

@Muffie
@Muffie
 

Thank you @Clary you sound like you’re going through the same. The balance side of things is such a nuisance isn’t it although I’m buffing my abs for summer as well👍😂I may be falling about but hey check my abs out 😃 I hope you feel better soon if possible @Clary. I started the steroids this morning and the ‘eyes to the right’ has lessened considerably and the balance so maybe they are working already! Trying to be positive. Thank you for your message. Judy