Tysabri and +JC - worth the risk?
Hi all
My Doc thinks Copaxone is no longer holding the MS at bay (two attacks in four months), and he wants me to start Tysabri immediately even though i tested positive for JC - it scares the life out of me, has anyone else started Tysabri when Jc positive? My levels are 1.499 so right on the borderline of high risk. Any opinions, exeperiences welcome, I really dont know what to do - thanks everyone.
Jo
@MrsMenz , the risks associated with Tysabri are now known. So you will be closely monitored to mitigate these risks. Any elevation of that risk at any stage would prompt a review of your treatment.
Hey Jo, I started Tysabri 18 months ago. I'm negative for the JC virus but regardless if you are or not they check you have no infections and closely monitor you all the time at every treatment. When I was put on it I'd had 3 relapses in 6 months and I haven't had one in the 18 months since and the only side effects are feeling a bit wiped out afterwards, maybe a headache. It's totally changed my life - but obviously it's much more difficult being +JC. Just go with what's right for you! Rosie