@MrsHawk 

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MrsHawk

Horror Stories

So i have been feeling so positive lately... like i really have been not worried about having MS and have convinced myself that i will be ok... and then i was told that i was naive by this lady and told that a very real possibilty for my future is disbaility. What if i cant handle it?... i feel so vunerable... i have heard so many horror stories lately from people who are doing so poorly and have lost so much... and then i tell myself oh but i can do so much and am physically strong so i will be ok... and then i learn about someone who ran marathons 10 years into diagnosis and still ends up in a wheelchair and i loose all sense of security. even if it is a false sense of security it was making me feel good. i cant even tell you how many horror stories i have heard/read about... god this is AWFUL. And to top it off today pops into my email the story of a woman who just killed herself becuase of her MS... what if this happens to me... i cant do this. i need to not have this disease. Sorry- bad moment.
@Stumbler

<a href='https://shift.ms/community/people/mrshawk/' rel='nofollow'>@MrsHawk</a>, there are some out there that like to revel in preaching horror stories. Goodness knows what agenda they have. Perhaps they just like someone else to feel as poor and wretched as they feel. Any stories from the past need to stay there. We're now living in the present. Medical expertise is moving forwards, albeit slowly, but it is progressing. Being diagnosed now has a better prognosis than having been diagnosed 10, 20, 30 years ago or more. Yes, there are bad things in this world. And some bad people. Sometimes, it's bad people preaching bad things. If they've got nothing nice to say then they should save their breath! :evil:

@mocharl

I can totally relate as someone fairly newly diagnosed--it's a bit of a rollercoaster. You hear a story about someone doing well so you feel good; you hear a story about someone doing terribly and you assume the worst for yourself as well. There is so much uncertainty with this diagnosis, I think it's normal to look at how other people have done with the disease--however, I am with Stumbler in that the internet presents a very skewed picture of how people in general are coping with MS, and so it's important to take everything with a grain of salt. No one knows what the future holds--people with MS and those without--so there is no point in obsessing about worst case scenarios way in advance. I know, easier said than done...