@MissGee 

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MissGee

Need this place

Hi been diagnosed with Primary progressive MS I have deteriorated in the past few months I am now under a hospital that now understands after being diagnosed with Transverse myletis for 11 years I feel like no one actually gets what I am going through
@Vixen

Hello @missgee, well, everyone here will understand what you’re going through at the moment. It’s so hard to try and describe what if feels like to other people. Use the search box above to look at any posts on topics you might have. There are lots of people on here with PPMS but essentially, whatever our diagnosis, age and stage, we are all here to support each other x

@merfield

@missgee, @vixen is right, we all understand how you’re feeling. A-very good friend of mine also ppms was for many years told she had TM it was only when she changed neurologist that she was re-diagnosed. I’m ppms too so you’ve got someone who knows exactly what your going through. I’ve deteriorated too but I try to think of the things I can still do & the lovely friends I have and how good it is to live in a country where treatment is free. There is no point in dwelling on things we can’t change. And so much is being done to improve our lives. Who knows, there may be a cure in your lifetime. Don’t let ms get to you!! xx