@MiaPi 

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MiaPi

Are you being monitored for these?

Hi all, During the past year (the year after my diagnosis), I have been reading a lot of research papers on MS. One important thing I noticed being mentioned in many papers is that in many trials and researches they take it one step further than just counting lesions on MRI in order to routinely monitor MS: They measure neurofilament light chain levels (NfL), which are a marker of inflammation going on in the CNS, as well as brain volume loss. To me, these two sound as very valuable biomarkers, however every time I ask at the hospital I am being told that ‘these are only implemented in research and not in the clinical practice’. My question to you is: are you being monitored for these two markers? If yes, could you please give me some more details on where/how? Thank you beforehand
@Stumbler

@miapi , I can only guess that general neurology departments/neurologists aren't geared up to run these tests..........

@embroideress

@miapi There must be a lapse between research trials and clinical practice, but I'm definitely going to ask my neurologist about this, among other things. I too have been reading research papers, and I'm wondering if neurologists have time to read many. These tests probably have to be proven to be efficacious and not too expensive in order for neurologists to have permission to prescribe them. I'm in France and everything must be approved by the Haute Autorité de Santé. Thank you for calling our attention to this. Have you got a link to at least one paper on this?