Anyone get worse after Lemtrada?
I had my first round of Lemtrada at the end of July 2016. I know it takes time for things to work but it seems that every day I feel worse. My old MS symptoms are rearing their ugly head as well as some new symptoms. I'm really hoping that once my blood count starts to come back up, I'll start feeling better. It is so discouraging.
Hi Maryjane, I'm so happy to see your post! I also had my first Lemtrada treatment near the end of July, 2016. I only took a couple weeks off of work, but am feeling like I may need to take more time off, because I am so tired, and am experiencing symptoms. I don't think I have had any new symptoms yet, and am continually checking for the electical discharge down my spine when I bend my neck forward. (Lamert's sign?) That was one of my early symptoms, 20 years ago, when I was disgnosed. Thankfully, I haven't felt that yet. So at least, there aren't many stray currents in my head right now. Do you have a low white blood cell count? I'm not sure what mine is. Love and Peace
@Maryjane I had my first round of Lemtrada the first week of May. I have gotten much, much worse since then. Everyday I am worse than the day before. I am so discouraged and depressed. I cant even work now. It is horrible. My weakness and walking are both significantly worse. I also have major balance problems that I didn't have before. My doctor doesn't say anything other than to be patient. I feel like I should be on another DMT now as this is progressing so fast. I hope that you start to get better