@Lizzy86

Last reply

Lizzy86

Coping with MS diagnosis 10 years on!

Hi, this is definitely not a rant, I just wondered if anybody else is feeling like this since diagnosis? I was just finishing school, and had a place on a hairdressers college course, when I started experiencing numb fingers and arms, which instantly divided my friend network, which I guess was sort of fine, we all need to grow up eventually. I eventually started working for a charity, but after working there for 5 years, and managing best I could in between the relapses and what goes with it, I eventually moved this year over to oral treatment, which is working out great, but after 10 years of doing my own injections, I feel like a shell of my previous self,with little confidence to get on, I'm just a bit frightened of everything right now! I'm turning 30 next month, and MS has really been my life for 10 years. (maybe a little longer! But if people just do sort of brush it off and just comment that its hard for everyone, it just brings me to tears! Comments would be appreciated. Am I really as alone as I feel? Thanks for listening, From Lizzy xxx

Lozwo

@Lozwo

Oh Lizzy :( No you most certainly aren't alone at all... I turned 31 yesterday and was diagnosed at 18. I fall apart often. It's hard and isolating.... I find the worst part about it is the anxiety about the future and never being able to explain all the weird sensations I'm feeling and how they affect my mood in so many ways... But I make myself talk and cry to someone. Because no matter how far you are into this journey it's important to let yourself have crappy days!! It's ok to feel upset with life ! Then I dust myself off and get on with my life and enjoying all the great things that I DO have. This space is invaluable. Having people here who understand is everything. I'm sorry your having a crappy time right now but you are never alone !! We are all in it together ❤️

Redman

@Redman

Why the f**k did this happen to me, is a question I often ask myself but it has and I struggle lots of days and feel sorry for myself but Lizzy we have it and you are not alone by any means ---((((((((hugs)))))))))))))) Stephen #YNWA

potter

@potter

I am also not the same person, more withdrawn and quiet my husband even points it out to me that I am not the happy person I use to be. I don't think I am depressed, that is always a possibility when you are taking a DMD. Keeping busy and not allowing my self time to think about my previous life helps. Potter

cameron

@cameron

But from what you saying, you HAVE been managing well, given that no-one gets MS without feeling negatives. Do you have good medical support? As has been said, it's OK to have bad days. Perhaps you're need of making some feel-good plans'? What would you really like to do and are there ways of achieving it with MS? We all need things to look forward to...... xx

Lizzy86

@Lizzy86

Thanks for all your replies everyone, I suddenly feel less alone when I remember that there are others feeling this too, I do have a lot of good coming up in my 30th year, lunch out with my closest friends that have stuck around, then a sunny holiday for two weeks with my immediate family (that I do still live with at the moment, but I'll sort that out soon too, hopefully!) And I do have a great team looking after my health at queen square, so that is pretty lucky if that's the appropriate word for it! Highs and lows come with the package I guess! xxx

Lizzy86

@Lizzy86

Hi Stephen, I much appreciate the hugs, but what does YNWA stand for? (hash tag aside) Thanks xxx

Stumbler

@Stumbler

@Lizzy86 , YNWA = You'll Never Walk Alone. Isn't Google wonderful? :wink:

Avengr13

@Avengr13

Take comfort that you are not alone! I have had many self-pity cries myself. I allow myself 15 minutes in the shower or a pillow, then gather myself together and move on. I am on an anti-depressant but I still have my moments. Just remember that we are all here in spirit dealing with similar stuff. (Hugs)

Redman

@Redman

Lizzy - YNWA - You'll Never Walk Alone..

Lizzy86

@Lizzy86

Hey red man, aww bless, what a lovely collection of words, means a lot, thanks for clearing that up for me, take care xxx

Lizzy86

@Lizzy86

And Stumbler ( John) Google is almost always my go to place with questions, just wasn't quick enough this time! ? X