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@Lightning87 

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Lightning87

Spinal lesions

Hi all :) I was reading the Overcoming MS book (OMS) and there was a part that said something about spinal lesions and ultimately you will be disabled or something along those lines. I have lesions on my brain (3-4 at present) and I did have one on my neck. I didn't have a full spinal MRI so who knows if I have any more down my spine as I just had a head and neck MRI since I had l'hermittes. I've been worrying about this since I read it. Do spinal lesions always result in disability? I think it was the word 'ultimately' that got me. I know no one can tell the future but I didn't know if anyone knew anything about spinal lesions and how these affect you 'ultimately'? Ash x
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@PhillipAndrew
@PhillipAndrew
 

Hi, I can’t wait to get my copy of that book as I’ve only read Taking Control of MS when I got diagnosed. I also only had brain MRIs done and only recently when I had a new symptom did they order a spinal MRI. I had occasional Urgency to urinate and they found no lesion but a hazy area that could have been the cause. I’m not sure about the ultimate effect of spinal lesions but I’m keeping on the strict healthy diet and exercise and all is has really helped. It did take about a year to normalize again after my initial disability so stay positive. Phillip

@Mlgilber1
@Mlgilber1
 

I hope that’s not the case because mine started in my spine and now I have one three times the size of a typical ms lesion and they don’t why. Anyways, I did a little research and it said spinal lesions are more common in primary progressive. It didn’t say much on the actual disability part of it though. It did say that they are still doing more research on it since typically they’ll look at brain MRIs and lesions on the brain for MS, but they are starting to look more at the spine. I’m making sure that every MRI check in I do that it’s a full one of my brain and spine to see my entire progression so I can see overall how mine are doing, which isn’t great at the moment. I have tons of new ones scattered throughout my brain and new ones in my spine and at the base of neck. But thank you for bringing this up. I’m interested in what others have to say about it and if they found anything like that out. I see my specialist this upcoming week and I’ll ask him for sure.