@Lightning87

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Lightning87

Joining the club!

Hey all So today I was diagnosed with RRMS. I expected MS a year ago when I started having vibrations down my spine and numbness in my hand. So about 9 months after being referred I have now been diagnosed - thankfully to a GP who listened to my worries and didn’t keep going down the carpal tunnel route. So here I am, meeting my MS nurse next month to discuss starting DMDs. I am feeling weirdly relieved at the moment following my diagnosis, maybe because I knew it was coming and limbo land isn’t the nicest of places to be. Looking forward to getting to know you all. :-) x

Lightning87

@Lightning87

Suspected not expected! ;)

grandma

@grandma

It's almost a relief sometimes being diagnosed because you finally know you're not going nuts with all these weird symptoms, at last someone has put a name to the beast. Write down all the questions you want to ask, you won't remember when you get there, think long and hard about the dmd's, don your research, read anything and everything (apart from Dr Google!) you can and don't forget to take into account age, lifestyle, type of ms, etc., and be involved, the neuros are not Gods, they don't know everything but your ms nurse is a really good person to develope a relation with. We're always here for a natter, we don't judge, full of useless info, but don't forget with ms there's no such thing as a stupid question, and don't get stressed cos it's no good for the ms😍

Stumbler

@Stumbler

Hi @lightning87 , relief is a natural reaction to a diagnosis, which has been coming for sometime. It's somehow a personal vindication. Even so, it can still come as a shock, so go easy on yourself for the moment. There is a future for you post-diagnosis. Today isn't a bad time to be diagnosed, better than 20 or even 10 years ago. :wink:

Vixen

@Vixen

Hello again @lightning87. It’s good that you have a while to think about DMDs. A good place to start would be to look at the MS Society website to look at options. That’s weird, I haven’t come across anyone else who had spine vibrations before diagnosis, mine was more like an internal buzzing. Yes, living in limbo is the worst, at least now you know and your life can start hence forth. All the very best to you x

Lightning87

@Lightning87

Hi all Thank you so much for your kind replies, I’m glad to have joined such a supporting cimmunity :) The spinal vibrations were when I put my head forward and was more like an internal vibration, I believe it was l’hermitte’s sign. Although that seems to have gone for now after having it for a couple of months. X

Lightning87

@Lightning87

Comminity* this phone!!!

doubleo7HUD

@doubleo7HUD

Ey up lass congrats on the chronic MSdebation 👍 Welcome to shift

Avox

@Avox

Right with you on the spine vibrations! I had them before diagnosis sporadically from the middle of my back down the back of my legs and I thought I'd done something to my back! I only get them now if I carry a really heavy bag or sit for too long on an uncomfortable chair though which is good because it means my mates always give me the comfy seats in the pub :D Definitely recommend reading this forum / MS trust and MS society websites for info and it's always good to keep a log of daily symptoms and whatnot for when you see the nurses :)

Lightning87

@Lightning87

Thanks so much for your replies :) I can imagine that life will be full of ups and downs, but suppose at least it keeps life interesting. It’s given me a totally new outlook on life, as cliche as it sounds it has made me appreciate things more I usually take for granted. Good to be part of a supportive cimmunity and good idea about symptom diary. Look forward to getting to know you all x