@LEAllen 

Last reply

LEAllen

Newly diagnosed

Hello, I’m newly diagnosed (less than a week ago) & have been a frequent visitor to this site over the past year while I was undergoing tests for what they suspected to be MS. My neurologist & MS nurse have mentioned 9 DMTs to me in total. Since reading up on these with the prospect of starting has been quite overwhelming. 😩I can relate to all the peoples posts I’ve seen on here where they say they didn’t want to be on medication for the rest of their lives. The diagnosis has meant my husband & I have had to think/plan about when we’ll want children, if we look to start a family soon it then limits my DMT choice. Do I have to pick one of the DMTs suggested or do I need to read up on them all? I thought you had to fit the criteria for certain DMTs? The majority of the ones that have been mentioned to me are 30% reduction in relapses, should I be looking to go with the highest % reduction in relapses? I’ve been looking on the ms trust site for info on DMTs. The thought of injecting myself and having injection site reactions is a big worry to me. I’ve changed my diet & lifestyle over the last year to help myself as much as possible too. So I’m determined to do what I can. Any words of advice for a newbie trying to find a good starting point. 🤯
@Irish34

Ok so I think that when you are pregnant you don’t have ms. ( Someone told me that ages ago and I have no idea if they where talking out of there arse or not) Also I read somewhere that the immune system winds down as you get older then ms starts to wind down with it so the idea of dmts is to get you through your younger years. Now both could be wildly wrong so people feel free to correct me.

@SRHI

Sounds as though you might need to go back to your ms nurse or consultant for some help narrowing the choices down, perhaps with a timescale in mind for when you might like to start a family. I’m recently diagnosed too. My neurologist gave me 3 choices of dmt based on my symptoms and activity of MS, and when I asked also helped guide me. It’s not an easy decision but it’s quite a personal decision too. It’s a balance between the risks you are willing to take (of relapses and side effects), how easy you would find the drug administration, and I guess for you also the impact on starting a family. Good luck x

1