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@Kimberleylouise627 

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Kimberleylouise627

Newly diagnosed.. Just finished steroids feeling rough and confused!

Hi, I was recently diagnosed in July I'm only 27 and have been on a roller coaster of emotions over the last few months from denial to anger and now just completely hopeless! My nurses put me on a 5 day 500mg a day course of steroids which I finished yesterday but I am feeling worse than ever, very blurred vision, numb face, cannot walk far at all and spinning head! Is this a normal reaction to them? They told me I could feel like this for weeks to come which is great having two young kids under 6 to look after! I'm still going through the process of waiting for MRI results to determine which type of ms I have and yet to talk to the nurses about dmds... Just feeling a bit left in the lurch
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@Stumbler
@Stumbler
 

hi @kimberleylouise627 . Steroids are not an instant fix. It's a high dosage of a steroid that is produced naturally by the body and will help you to recover. The steroids will start to assist your recovery over the course of the next 6 - 8 weeks. You're probably suffering now from the steroid crash as the body gets used to this high dose. As for the range of emotions post-diagnosis, they have been suggested that you need to navigate the following emotional phases :- 1. Shock and Denial 2. Pain and Guilt 3. Anger and Bargaining 4. Depression, reflection, loneliness 5. The upward turn 6. Reconstruction and working through 7. Acceptance and hope It is a rollercoaster ride and you can double-back and revisit phases. The complete journey can take up to a year or more. So, go easy on yourself and ride this storm out. I appreciate that being a young Mum is very demanding, but try and pace yourself. If the kids have a nap, try and have one too. MS is a manageable condition. It's a case of working out how to live in harmony with an unwelcome guest. Hope this helps.

@Cazzzzzy
@Cazzzzzy
 

Hi Kimberley ! ... I just wanted to say that I hope this passes quickly for you and you feel better soon... It's really no fun waiting especially when feeling so rough and with youngsters it isn't easy but you really must take it as easy as you can and soon you will get some answers! Anyway just wanted to say hi and everyone here will understand, you're not alone through this xxx