@Jekmccloskey

Last reply

Jekmccloskey

Hi... I have just been diagnosed last month ...

I feel like since my diagnosis I have been 100 times worse
Londonderry, United Kingdom

SimplyJuan

@SimplyJuan

Sorry to hear that. What’s been worse though? Have you started any meds/infusions yet?

1

Laura87

@Laura87

Sorry to hear that, what symptoms do you have? x

1

jen1973g

@jen1973g

Bet it’s emotional stress about getting a diagnosis stress or upset is my main trigger to flares

1

Jekmccloskey

@Jekmccloskey

Thanks so much for replying Yes I have felt awful last couple weeks my hole body was paralyzed I don't no if it's my mind playing tricks xx

Vixen

@Vixen

Hello @Jekmccloskey, sorry for your diagnosis. As newly diagnosed, the chances are that you are still recovering from whatever led to the diagnosis, so focus for now on the all the essentials; good sleep if possible, healthy exercise and diet. You brain will now be attuned to picking up every single thing now, which is normal after a diagnosis. Most of us would tell you it takes up to a year to get used to the idea of a diagnosis, so don't be too hard on yourself. If you type 'new diagnosis' into the search box you will fine lots of examples similar to yours. All the best! x

1

Jekmccloskey

@Jekmccloskey

Thanks a lot I now know it's not only me as noone I know understands and so frustrating at times I have 4 children ranging from 8 months 2 . 7 and 10 so hard to even sit down for even a short time I just feel extremely tired all the time xx

Stumbler

@Stumbler

Good grief, @Jekmccloskey , you have every right to feel tired, being a young Mum of four. That would make any Mum feel tired! So, call on family and friends to help out. Just take advantage of all offers, so that you can grab short breaks to catch your breath and look at the good things in your life.

3

scribe

@scribe

Same here. I was diagnosed in december and for several weeks felt like I was suddenly getting a lot worse, but it seems to have stabilised now. I think a lot of it was anxiety and also hyper-focusing on every little thing I would have previously ignored

1

Oonie

@Oonie

wow you have a lot on your plate with 4 little ones. Have you got a MS team for advice? ask your friends for help. put yourself first!!

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doubleo7HUD

@doubleo7HUD

It’s bad enough just Avin ms but little ens too and lockdown πŸ˜‚ jobs fecked. Home schooling lasted about 2 days here then gave up. Not left the house for a month and roles reversed I’m stuck with the kids and missis going out to work bless her.

1

doubleo7HUD

@doubleo7HUD

Try pace yer sen as much as u can it’s hard with little people causing chaos but you can always have a sit for a few mins inbetween little bursts and rest up. Kids furniture is a life saver too just right height to prop thee Sen up on, don’t recommend sitting at a little person table tho took me hours to get up from tiny chair once

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doubleo7HUD

@doubleo7HUD

πŸ˜‚

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Jekmccloskey

@Jekmccloskey

Haha

Jekmccloskey

@Jekmccloskey

Thank you everyone for the comments spoke to the ms nurse for the first time since diagnoses ... I have to choose my own meds!!!! What mindbogelin to me what do I choose please help I'm a fish out of water here

1

doubleo7HUD

@doubleo7HUD

Read up on it as best you can ms trust has something on it to help you choose il find the link for thee and post in in a mo

doubleo7HUD

@doubleo7HUD

There tar lass jobs a good en good look and if ya need owt giz a shout

1

Jekmccloskey

@Jekmccloskey

πŸ’•

Lowlander

@Lowlander

@doubleo7HUD I was starting to wonder where you were, good to read your dulcet tone again πŸ‘

1

doubleo7HUD

@doubleo7HUD

@Lowlander *nervous twitch* been locked in a cage with the kids for months *blanc expression*

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Jekmccloskey

@Jekmccloskey

Hi I have now choose my meds ...... I think injections once weekly

Tracey1982

@Tracey1982

It’s going to take a while to sink in and accept took me over a year! I had worry, emotions, symptoms worsened just take 1 day at a time

1

Jekmccloskey

@Jekmccloskey

Yes I'm trying too accept now soooo hard with 4 children tiredness takes over everything x

Spencerd

@Spencerd

There will be better days I promise you that. I'd want to know about OMS , has everything to learn on that website, from diet to medication. Very easy to digest important info on advice, message me if you need more info πŸ€“

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Jekmccloskey

@Jekmccloskey

I appreciate it thank you all so much

Jekmccloskey

@Jekmccloskey

πŸ’–πŸ’“πŸ’–πŸ’“

Gem3

@Gem3

Hi, I experienced this when I was diagnosed, for me it was stress and anxiety. I had never heard of MS until the doctor told me, it was a complete shock & my mind and body didn’t know what to do with it. I have 3 little ones and it is hard to rest, but I think for me anyway they help me with my MS, your life is so hectic with them you don't have much time to think about it (when the shock has gone) good luck with your treatment πŸ’•πŸ’•