Freshie
Hi guys!
I just got diagnosed with ms and would like to hear from your experience with ms drugs. My doctor suggested lemtrada the most. I am not really a medication person at all but if it's something that helps me on the long run I would def try it. I know every person is different but I would just like to know in general how you guys went with treatments etc.
A bit about myself: I am 25 years old, residing in Australia and originally from Germany. 3 years ago I had my first symptoms. It started with blurry visions to the point I could not see at all and then it went on with my speech and half of my face was paralised. That happened in Germany. I got plasmapheresis treatment and they disgnosed me with ADEM. Now in Australia after 3 years I had symptoms in my right leg and got diagnosed with ms. I also have bladder issues. Now I need to make a decision on how I want to go from here.
Would be really happy to hear from guys.
Cheers
Jana :)
Hey Jana.. I hope that the new diagnosis is welcomed rather than scary... My diagnosis change my life as I finally had answers.. Hope you feel the same... Sorry to hear about the bladder issues.. I am on Capoxone daily injections, but busy migrating to the Gilenya clone... My medz are not effective anymore.. In RSA where I live, we cannot choose our medication, the Neuro chooses for you and you go with the plan... I really hope the medication is effective for you, I was diagnosed 3 years ago and this is my third treatment... My only wish for you would have been if you could have been a lot older before the diagnosis, it's difficult.. I was 30 when i was diagnosed... It sucks when you want to be active and social and your body does not play well with that idea.. Please ask more if you want to know more, people here are so awesome and so supportive... I have had great help in the past on this site.. Ask and you will be answered! Happy Easter MS'ers
Hi there, I got diagnosed in Feb this year and am 22. My neurologist suggested that I go for lemtrada to hit it hard and because my MS is quite active (2 relapses in 8 months). I am due to start lemtrada in 2 weeks. There are obviously risks associated with it and I don't like taking medication but I decided that the risks outweighed the benefits. I'd personally rather have an intense treatment now and improve my quality of life rather than later down the line have a more debilitating ms. Best wishes!