@Ireneb74 

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Ireneb74

PPMS and no new lesions

MRI results came back...... no new lesions....... PPMS is a relatively new world for me and trying to get to grips with no treatment is a hurdle I am still being faced with. My mobility is getting worse but only physio and walking aids will see me through. I use a FES, walking stick, ankle straps (these are being replaced by ankle splints after a recent physio discussion). I also have "lady" problems and these are all being looked after. I start meeting a psychologist this week - I have previously admitted to really struggling adjusting to my new "altered" life. I had a past life before PPMS and I was, and I can now admit this, being brushed under the carpet. Goodness knows what the psychologist will unearth throughout our meetings...... In my previous post I mentioned that PIP has decided in its ultimate wisdom that I no longer need my car, in about 5 weeks my car will be gone. Not something I am looking forward to. I have applied for the Adult Disability payment and will wait and see what transpires from that. I am finding that I am not getting any treatment quite hard to explain, especially when everyone around me sees my Disability progression. Anyone got any tips for that?
@Clune_Ems

Hi I’m a mum of three and I’m trying to find out if my MS is progressing I can’t walk without my walking stick I’m 42 and I’m struggling with intermittent incontinent

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@NumptyDumpty

Good news with no new lesions. What's your experience with the new Adult Disability Payment? With PPMS and limited disability you should be able to get Ocrevus, worth discussing with your Neuro/MS nurse.