@Hayleybr 

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Hayleybr

One last attempt at Tecfidera

Hi all :) I started Tecfidera about five weeks ago. The flushing is uncomfortable, but I tolerate it for the greater good. However, in week three I developed severe abdominal pain - like a hot ball trying to get under my ribcage. This continued in waves for a few days, so I stopped taking the meds (after trying everything else) to see if it would help, and it did. After a few days, I started the meds again in the hope it was a blip, but by the first evening, I was in pain again (milder, but same type of discomfort). Fast forward to three days ago and my nurse suggesting taking Tecfidera just before bed and sticking to one daily for now. So far, so good! I'm not waking in the night in pain, but I do feel very slightly bloated. I know I can't continue like this forever, so wish me luck with eventually getting on the higher dose and actually helping my MS!! 🍀❤️ P. S. I want to stick with DMT pills, and Tec is the only one available locally right now.
@Clary

I haven’t taken tecfidera, but I tried Avonex. I couldn’t get on with the injection. I had to wait 9 months to get a DMT that I wanted. Super hard.

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@Clary

Could you get an appointment with your consultant to discuss alternatives? Charities have some great advice about DMTs available in the UK. Different DMTs are available depending on how active your MS is. Hope you can get some support. Talk to an MS charity to get advice about DMTs. There are lots of DMTs available on the NHS. Good luck 🤞.