@Hayley_Norton 

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Hayley_Norton

Symptoms but no lesion MRI?

Hello all, I still get daily symptoms with no diagnosis. I have IIH, cerebral atrophy and cerebellar atrophy but no lesions. How long and how many MRIs did it take to get a diagnosis for you? Was there no lesions on the first but some on another? Interested to hear others journey of diagnosis please. Xx
@Tracey1982

I had about 3 mri I think over a 2 1/2 year period which the last one showed new lesions so hence the diagnosis. It can take a while. I was lucky I got mine fairly quickly.1st they thought it was labarynthitis, then said it may be clinically isolated syndrome then multiple sclerosis. Try and not worry it can be a lengthy process. 😘

@Hayley_Norton

Thanks for your reply @tracy1982 I notice we are a similar age. How long ago were your first symptoms? I've had IIH for 15 years but ms type symptoms for 18 months. Thanks x