Lemtrada access
I was wondering if anyone has been given access to Lemtrada treatment in Newcastle UK?
I am yet to be offered any DMDs (and am really scared that I might not be as desperate for something to help with on-going nerve pain, foot drop and walking difficulties).
I have an appointment with MS neurologist at beginning of February and I want to ask about possibility of being given Lemtrada but not sure if this will even be offered.
The neurologist who recently diagnosed me thinks I might have RRMS due to reduction in inflammation on second MRI that I was given but this hasn't been confirmed yet.
I guess I am just trying to manage my own expectations of what is likely to happen when I attend my appointment.
@gilbo , Lemtrada is available on the NHS. It shouldn't matter where in the UK you live. You need to get yourself familiar with the Disease Modifying Treatments (DMTs) which are available, especially Lemtrada, so that you're in a position to have a fair discussion with the Neuro. The following link should bring up a booklet on DMTs :- http://support.mstrust.org.uk/file/MSDecisionsWeb.pdf You might also want to go through the MS Decisions website too :- https://www.mstrust.org.uk/understanding-ms/ms-symptoms-and-treatments/ms-decisions so that you can decide, which treatment you find most favourable. Knowledge is power.
Thank you. I'm finding this site such a help, it's nice to feel there is support and advice readily available.