25-35 MSers (RR MS, female)
My wife was diagnosed with RR MS in Dec 2015 and doesn't know anyone else that has it. She's 35 and has always been such a bubbly person. She's worried about meeting other MS people in case they're quite progressed and she'll find it upsetting.
I would love to show her that there are others out there who are going through the same thing as her - trying to be a working professional, but finding it very hard at times.
Shes on Tecfidera which I believe is causing her to feel nauseous- be amazing if others had the same experience.
Hi Gary, in a similar position to Avril although a bit younger, and would be happy to chat to your wife if she's interested in meeting, i'm on tecfidera (i've been on it for about 18 months and have had no problems to speak of, but i've had some coping mechanisms which helped me onto it i think). you've added me so feel free to DM, I'm happy to travel down to Teddington to meet as well as I've some friends nearby.
@gary_brosnan I'm a little older - 37. I was diagnosed last year. I also have RRMS (and received fond Round 1 of lemtrada last year). I'm a city professional (full time corporate lawyer) and would describe myself active of mind and body (currently celebrating the anniversary of the on set of my MS symptoms and being six months post Lem with a (very bloody hilly) hiking holiday around the island of La Palma). To date I've been fortunate and my MS symptoms have been nothing worse than numb toes ( - and even then I managed a 27 mile walk along the Thames Path (denial is a wonderful thing!) so I'm grateful for that). I can understand your wife's fears in meeting people with more progressed disease. I was (and in part still am) the same - but have found it useful to talk to others in a similar situation to me. Please do drop me a note if it would be helpful to talk or have a beer. Ps - Teddington lock is lovely. My fiancé used to live in Long Ditton and his old running club often race out of the Hawkers so we know it quite well. Kat xx