@Fayebellina 

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Fayebellina

MS: My unexpected diagnosis!

After a day trip to London, England, I started to experience some tingling in my hands that evening. The following day I slept pretty much all day and then the morning after that I began feeling tingling in my toes. The tingles made their way through my feet, up my legs, and eventually stopped just above my breasts. I had the squeezing feeling (that I now know as am MS hug) around my midriff. Couldn’t stand or walk unaided. Legs felt like concrete. Rubbing my toes together felt like they were made from gravel. Actually I felt like my lower half was The Thing from Fantastic Four! After 3 different urgent care stays, an eventual admission, innumerable tests and being surprised I had any blood left the amount they took… I was diagnosed with RRMS. It still feels weird to write this! Well, that was about 3 months ago and I start treatment next week — Ocrevus — and I’ve been reassured reading the posts of peoples experiences on here. Before this episode began, I had never knowingly experienced anything that I would have attributed to or even considered as being MS and certainly nothing I ever visited the doctor for. Of course, now I look back I can think of things that make sense. But again, I would never have considered visiting my GP or PCP for this. I haven’t been able to find many people that can relate to this experience but I’m sure there are thousands of you out there!! If you can relate, please let me know. Feel very alone at times :-( #newlydiagnosed #ocrevus #relate #rrms #thething
@VeronicaKateC

Hey! I’m so sorry to hear this. I can totally relate so you’re not alone. I had my second covid jab last year and two weeks later started with numbness and tingling in my fingers, spread to some numbness up my arms and then all around the waist with the MS hug. Firstly I thought I’d slept funny or had a trapped nerve, then I even thought the squeezing on my waist was cos I had been wearing tight tights lol would never have thought it was MS. Went to my GP who sent me straight to a&e and I saw the neurologist the next day - it was spreading to my legs but not hugely just making it difficult to walk fast. The neurologist said it seemed like inflammation on my spinal chord and I had an MRI a few days later - I was diagnosed with transverse myelitis and CIS due to two tiny brain lesions. In January this year after a second MRI diagnosed with MS. About to start Tecfidera this week fingers crossed. Eventually most of my original symptoms went away other than my hands flaring. It is really hard to come to terms with and I actually have it hitting me worse now these past few weeks than it did back earlier this year. I don’t think I had MS symptoms prior in the past but definitely hadn’t been feeling great on and off over the years and remember having some trickling sensation down back of my hip a few years ago when googling it said MS lol 🫣 but I didn’t think too much into it. Hope you’re ok. X

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@Drago

Yes i relate . My ms started from my toe made it's way up leg, arm ,chest on 1 side all the way to my face cheek . This side of my body was partialy paralised could still walk but a struggle. At time described as like lots off small tree branches under my skin and electric pins needles. This was ms attacking my nerves and electric pins and needles was my nerves shocking me as they had been damaged. Had lots symptoms since but best thing done was getting treatment. Wish I started earlier as now have some permanent damage to my vision. I did not want to for along time but so glad I did as it as calmed my ms attack lots and lots all the best and stick with treatment it really does help stop the damage from ms.