Newly diagnosed
👋🏻 I’m a 29 y/o female. I was diagnosed just this week and still coming to terms with things, and waiting on various other tests and being allocated a team.
I had cancer in 2019-2020 and had been putting recent symptoms down to post cancer fatigue. After having strange spasms, crawling sensations, awful memory, concentration, dizziness and fatigue, I managed to book a neurologist appt through my private health insurance through work. I already have known peripheral nerve damage but the neurologist wasn’t expecting what came out in the brain scan and nor was I.
I had a cervical and brain mri and was told the brain scan was typical of someone in MS. He did say I have some lesions in odd places but in the same breath said each MS person us different. He mentioned that my scan showed brain stem involvement. I’m now waiting on a lumbar puncture and various other tests. I had a scan during chemotherapy which showed white lesions but they said it was just likely to do with chemotherapy so I’ve asked my neurologist to compare.
I’ve a feeling I’ve had this for a while and I’ve been putting the symptoms down to my cancer journey.
Really sorry ur having to deal with this in the aftermath I.e post cancer All ur symptoms sound bang on you should ask the neuro for their recommendation on a good ms specialist. So that they can liars with ur oncology team & u to workout the best treatment/ plan moving forward. Good luck with everything & im sure u will get lots of support from all the great folks on here. If u ever need to chat feel free to DM. Take care of urself ur important. Like the big C diet, mindfulness & exercise is the main mantra check out ms trust, ms society & insight timer for free yoga, Pilates & meditation & myselfhelp.co.uk for self supported techniques. Avoid Googling it will just add to the stress & remember u have already kicked cancers Ass so ur already a warrior & a survivor !!!!!!! 👍🫶🤞💪
Jesus, cancer and then ms how are you getting your head around all that. I can imagine your exhausted with anything to do with doctors at this stage.