@ERLCA92 

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ERLCA92

Neurology report

I’ve had the report from the neurologist that ran the brain scans. To summarise: I have typical lesions of MS in the periventricular region but also In the Infratentorial area of my brain with brain stem involvement. I have other smaller lesions in other parts but these are the main 2 he is discussing. He had a look at another MRI I had done in December 2010/Jan 2020 after I had a fixed dilated pupil and blurred vision during chemo - noted that there were subtle white matter lesions that could plausibly be of inflammatory nature, but it was felt the “appearance” wasn’t typical of this so it was put down to chemo. However noted that the visual symptoms raised the possibility of optic neuritis - which is common in MS isn’t it? At the end of the report he has put in retrospect he feels I’ve had previous episodes and not related them to MS - this is likely true, I attribute everything to chemo damage. I’m wondering how many others have Infratentorial lesions - he’s suggested this is uncommon in MS but on doing a quick Google it does seem to happen, but he’s correct it seems less common. My mood swings have been crazy recently. I feel like I’m in limbo because I know something is there but not being treated yet.
@lemon

Are you seeing an MS specialist? I wasn't a clear case when diagnosed and the whole team of neurologists and radiologists had a meeting in the hospital to discuss my case and decide. I don't think this is something you will be able to google and work out yourself! Leave it to the experts, and ask for a 2nd opinion if you're unsure about things. You're entitled to it within the NHS. Good luck with it x

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@Lowlander

@ERLCA92 Normally they use the McDonald criteria to diagnose ms in the UK. Have you had a lumber puncture yet? The link below explains how it's used to diagnose MS. All the best. https://mstrust.org.uk/a-z/mcdonald-criteria

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