@Denisa

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Denisa

Does Copaxone make you feel angry?

Hi everyone! Passed my 300th Copaxone injection last month, and I was just wondering if any of you who are on it have had troubles with being over-anxious, angry and overall emotional unstable? This is a real puzzle to me, as I'm going out and about with my day as planned, and at certain (unplanned) moments, I snap, without being able to fully control my reaction. And when it goes away, I'm back to normal. But with some after-effects if it went really bad. So, what are your thoughts on this? Thank you for all your help and support! With love, as always wishing you a pain-free wonderful day, Denisa

Stumbler

@Stumbler

Hi @denisa , you could try looking up the terms "emotional lability" and "PseudoBulbar Affect". They are symptoms of MS.

Denisa

@Denisa

Thank you @Stumbler! I read the descriptions with even more attention that before, and I didn't find me in them. Sorry if I wasn't clear in my message (I saw that now). The anger or anxiety build up because of a certain annoying thing and I feel the need to vent. I try to control it rationally, but there are times when my emotions are far more powerful than any logic. It tends to happen mostly around that time of the month and peaks in its middle, so I blame it a lot on hormonal feat. MS frustration issues. I noticed that it clears away afterwards. But then there's the after-injection moments when I get anxious yet again. This is so confusing! I needed to get my head around this issue, so I immediately thought "Shift!". Hope I'll get to the bottom of this soon... :))

cameron

@cameron

I got like that when I was on Copaxone and still get like it now I'm on Gilenya. I've come to believe that in a funny way it shows our strength. We cope so well day to day: think about it. I bet you're doing all sorts of things really well - better than many without MS. Give yourself a pat on the back. There's a 'but', though. I don't cope with any extra burden. Anything out of the ordinary, whether it's a new symptom or a relationship issue, or just an unexpected irritating situation.... I don't fare very well. I've stopped beating myself up about it and in the process lost many friends, but now I tell myself that it's the price for dealing with MS. And that's so important that it outweighs pretty well everything else. In your case, if the injections are beginning to cause you stress, you could move to an oral therapy. Just a thought. xx

Sonia1984

@Sonia1984

I have had this issue as well were any stress or certain people that just drive me up the wall. I have lost friends due to this but then I think about it and realize it's quality over quantity when it comes to certain people in our life. I just don't have the patience for people that take offence over everything and anything, I guess the Ms did me a favour in that sense. Now I am happier and try to live as stress free as I can and stay away from high maintenance people who either put me in a stressful situation or aggravate my Ms. I ensure that I am in a happy place as well by controlling my environment. If anything this little quirk with our Ms has made me more blunt and outspoken, which I am not going to lie I think is a good quality and you should not be ashamed. You are dealing with Ms and all the side affects with your meds you don't need to feel bad and you don't need to apologize or explain. I still have my freak outs but the people who love me understand, anyone that doesn't and wants to have an hour long talk about it I don't bother with anymore.

Denisa

@Denisa

@avrilt You got that right! Crazy could be my middle name at times :)) The joys of having MS AAAND being a woman. Add that to frontal lesions same as you, stir a little anxiety-generating Copaxone, hormonal issues and you have yourself a Merry little Christmas! Ooops, sorry! That was some other thing! :)) Rewind: and you have yourself a boiling pot. Enter any type of annoyance and we have LIFTOFF, ladies and gents! :)) Funny now, but at that moment enter crazy MSer. Fatigue might indeed have a say in this, as I have been feeling a bit more tired than usual durin the last week or so. I find it really refreshing to "hear" that my anger can be generated by some of my lesions. I'm really not bragging, trust me on this, but as no one told me anything about my lesions, I went online and did my own reseach. Turns out that my frontal and parietal lesions could cause me trouble with emotions, thought and sensations. That's where most of my symptoms are! Thank you for taking time to answer me. It's so relieving to hear that I am not the only one going through this kind of situations. Would love to chat some more from time to time. Go check out my Twitter if you'd wish to do so. Have a lovely day! Denisa

Denisa

@Denisa

@cameron Always such a nice person! Thank you for taking the time to write down your thoughts on this topic and for cheering me up. It does help. We are indeed strong or getting stronger by each issue we go through. I can totally resonate with those unexpected irritating situations problems. It's exactly what I went through the other day. The sensitive issue here is that the people who annoy me most are the ones that I care about most and that do that in return. They only want to see me do better and feel ok, but they get frustrated at times. They wish MS didn't exist in me. Classical topic, that I think any of us can relate to. I have always been outspoken. Imagine how I am now! :)) I found out that people can't really understand how can I be fatigued, nap for three hours and still feel tired. "Welcome to my world!" I say. But then that frustration comes in and they get snappy because of my MS and what it causes in our relationship (ex: don't have the energy to do the dishes >> dishes stay in the sink >> he come home and wants to cook dinner >> needs dishes but they're not washed >> enter acid word exchange :)) ). The funny fact, @cameron, is that they do understand and support me with everything I need, but sometimes they need me for them. And the other day I was more focused on my issues and wasn't available. That's what started it all. Thank you once more for your answer and encouragements. Wishing you a wonderful day! Stay in touch! Denisa

Denisa

@Denisa

@cameron Unfortunatelly, in Romania there are only injectable and infusable treatments at the moment. They said something about bringing Gylenia sometime next year. (Feelin' sooooo sarcastic right now! :)) ). By the way! How often do you get checked by your neuro to see how your MS is going out and about? 3, 6, 12 months? I haven't been checked by a neuro since Nov 2014 when I had my LP done. Since then, I went by myself and did an MRI to have as proof for before my Copaxone treatment, started the treatment in March 2015 and plan to schedule a consultation at a private clinic, just to be able to get the needed recommandation for some blood tests. (And then they wonder why MS is so difficult in this country! There are people who can't do or afford these things!) . Sorry about the rant, bit I need to know how others have it, so I have to give details :)) Denisa

Denisa

@Denisa

@sonia1984 I do that too! Controlling my environment has been one of the best decisions I've taken since my diagnosis. I learned so much about how to make me calm down and go with the flow, etc. It scares me how some people in my city go through so much stress and very old-school thinking when it comes to managing MS! I so want to help! I know I don't have to apologize or justify myself all the time, but then again, they find it frustrating to see me tense or tired or to feel neglected. Something like the MS is taken their girl away... Both my parents and my boyfriend think this. It shows, and they have said it to me. They always encourage me, and I couldn't be more grateful for having them, but I feel that sometimes I exhaust them. My MS does that. And then I get angry... But bottom line, I need to accept, adapt and overcome. Hope to get better at this! There's that cheesy cliche: "what doesn't kill you makes you stronger!" (Cue Kelly Clarkson ;)) ) Have a most wonderful day! Denisa

cameron

@cameron

@Denisa - that is sweet of you to say that! Thank you. Just to add to the mix - I've learned that far from my being the only person in the universe that is facing the unfaceable, EVERYONE is up against something major. It's usually relationships or health. I'm 65 now (yes, ancient!) and know so many folk who are either divorced, going through a divorce or should be doing so! People my age realising that the past thirty or more years have been spent in a relationship that is dying or already dead. Their bitterness and sense of permanent loss I can totally identify with for a different reason! Why me? What did I do wrong that made me get MS? The other thing I've observed is that whereas in 2003 when I was dxd I didn't know one other person my age who was 'in the system' i.e. having to see a consultant regularly, being on meds, being monitored for bloods etc. Now? It's really everyone I know! Even if you're not ill as such, there comes a time when everyone gets 'on the GP's books' because they will start monitoring your health - weight, cholesterol, blood pressure, alcohol units, exercise etc. Funnily enough, this came home to me a while ago when I was working out a menu for a dinner party. Nightmare. One friend has been advised to go gluten-free, one is now diabetic, another has recently developed a life-threatening allergy to all peppers and don't even think about serving grapefruit as a starter 'cos everyone's taking statins!! None of this affects my MS but it does affect the way I think of myself in relation to other people. My place in the world. At the end of the day, we're all in the same boat. xx

stelmay

@stelmay

Hi I've been having very bad angry outburst the next day after my Copaxone injection .