Annual mri for ppms
Hi all, I had a contrast MRI last year a few months after my diagnostic mri in April. This showed I had no new lesions so I was deemed not eligible for a trial of ocrevus. I thought my consultant said I would have annual mri to observe the progression & from that I presumed if any new lesions showed then I would become eligible. In a telephone review (which I had to ask for!) he said he doesn’t do annual mri as that would be far too costly! Does anyone out there with PPMS have annual mri?
Hi @ColettePage, I am in the same situation with mri’s not showing any change, so not being eligible for Ocrevus, but I do get an annual scan. My neuro has been good at talking through any options and I’ve started taking Fampridine which has helped my walking. I am in Scotland so I don’t know if the rules are different, but I already have my next review appointment for August and will have scans 3 weeks before. I’d go back to ask how your progressive condition is going to be monitored if you don’t have a scan. Hope you’re doing ok otherwise.
@d1zzy thanks for this. Great you’re on Fampridine, sadly it’s not available for me. Nhs Scotland & NHS Wales yes but not nhs england!! 🤬🤬