Hi everyone, I was diagnosed with spms late 2020. Not on any treatment as apparently we can’t get it within the nhs trust catchment that I’m in but siponimod is all that can be offered with spms or so my ms nurse has told me. I’m not going to lie I have struggled, struggled with coming to terms with the diagnosis and the living with it if I’m honest. It has taken the strength of my right leg predominantly and some weakness in the right arm, I struggle holding a pen and using knives to prep food, walk with a stick as balance is shocking and I have limited feeling in my feet. Many other symptoms too but like all my fellow msers too many to mention. They think my symptoms started 27yrs ago when I was diagnosed with labrynthitus ( don’t know the spelling ) but I suppose we will never know. I feel quite low often, not only diagnosed with ms but we have the grandson living with us he has adhd with social & emotional difficulties which brings its own complications plus a mother with massive memory issues that won’t see a doctor 🤦‍♀️ I have lhermittes too and suffer with spasms through my body occasionally. I have frequent headaches which last around 3 days at a time but I’m told they are caused through over use of pain medication which consists of paracetamol 3 times a day and tramadol 3 times a day but honestly if I didn’t taken pain relief I wouldn’t be able to function at all so what’s a girl supposed to do…. I have an appointment with neuro physio on 29th to discuss fatigue management and I’ve got a lady calling on me from speech & language as sometimes I seem to forget to swallow which causes me to choke slightly. Do any of you suffer with any of the above & if so how do you cope with them?