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@CheshireCat 

Last reply

CheshireCat

Please help me understanding Plegridy!

Hi all. I refused to start a Tecfidera protocol due to the huge list of side effects, that I don't think are reasonable in my actual condition. I'm almost normal, wouldn't even visit a doctor in case I wasn't diagnosed with RRMS (I had two eye episodes, that's why I made an MRI and was diagnosed, but healed spontaneously). Sometime my vision is a little blurred, sometimes I feel needles and pins in my left hand, sometimes I feel my left foot more heavy than normal, but never too hard or for too long. So I decided that I wouldn't take all those risks. But I know I have the condition and need to retard its progression and of course I want to do it. So my Neurologist gave me Plegridy (to inject). I am not sure about what kind of medicine this is, and have two main questions: Is it immunosuppressor? Is it a DMT (and what does this mean)? Please help me, I'm confused. I don't want to allow my MS to go nasty but don't agree with immunosuppressors. My imune system attacks me, I know that, but it also defends me. I don't need to take the risk of being seriously vulnerable to lots of infections, I don't think it would be good to suppress my imunity! Sorry for rambling. Thank you!
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@Stumbler
@Stumbler
 

@cheshirecat , all Disease Modify Treatmants (DMTs) are immuno-suppressants. They don't stop the immune system working, they just try and stop our immune system attacking us, so frequently and so severely. There's a lot of detail here for you:- https://www.mstrust.org.uk/understanding-ms/ms-symptoms-and-treatments/ms-decisions/disease-modifying-drugs Don't worry about rambling. It's better out than in! :wink:

@CheshireCat
@CheshireCat
 

Thank you @stumbler! You always provide a good state of mind, sometimes in a simple and short phrase. I opened the link and read everything, also opened other links from there, and printed a lot of good information. I'll have a lot to read. But I must admit I was hoping that Plegridy would not interfere with the immune system....... maybe I'm still a naive MSer. I feel deeply inside this sentence in you link: "Your MS team will step in quickly if there is any cause for concern. However, some people may feel that, despite regular monitoring, they are unwilling to take the risk of developing serious side effects." .... oh well. I guess I'll have to give up some of my believes, even if there are people who do not want to take the risk. I already refused Tecfidera, due to the riks and his one (plegridy) was given to me as "the less aggressive". So I guess I'll accept it... I'll have to make up my mind before the next appointment with my Neuro, which in a week. She accepted that I'll also make the Vitamine D Protocol (huge amounts of it!). So I'll try both. I would prefer to stick to Vitamine D only, because it seams more natural to me, but I was not able to get an appointment in the clinic that performs those treatments before middle of May. And I feel unsafe and this is a horrible feeling. I want to make something to slap this thing right in its ugly face. I'm always tired (my worst symptom) for no reason or for a little nothing, like hanging clothes out of the washing machine. :( Take care, my friend, and thank you very very much!