optic neuritis
Been diagnosed with ms for nearly a year fully although had cis for 5 years before that. I have built up quite a horrible health anxiety with it constantly worrying when a relapse will come!!!
I often worry about my eyes because sometimes it seems like my right eye is sore/aches.
Just wondering for those of you who have experienced ON what it feels like and whether it came on suddenly or whether you felt pain first or vision lost first??? its probably my main anxiety as sometimes i will even have a bit of dust or something on my glasses and for a couple of seconds think OH GOD ITS HAPPENING! feel like a complete idiot afterwards but this morning my right eye has started to ache a bit so the paranoia has kicked in!
@blagaman182 Hello 🙂 I fairly new to this and still on the road to a definite diagnosis and I feel like I’m almost at the end of it. My first symptom was optic neuritis, they are now assuming that was it (been waiting months to actually see specialists and by the time I did it was away). It came on for me with really sore pain any time I moved my left eye and also a weird blurry ness that was at the top of my vision and as days went on it crept round my peripheral vision. I could still ‘see’ but it was more grainy... and foggy or just wasn’t right. Anyhoo I am the same as you I was very anxious and waking up everyday wondering if it would ever get better and it did, after 6 weeks. The vast majority of people who have an episode of ON get their vision pretty much back to normal. It’s been like 5 months since that and my eyes are fine. If you do think it’s that, the worst thing to do it panic. I wasn’t given any steroids for that because they didn’t know why I had it so I had to sit and wait it out 🙄 but if you do get it, steroids should speed up the recovery. I know that’s what I’ll be doing if I ever get it again. You know you’re body more than anyone so if you think you’re vision isn’t right and it’s persisting/getting worse after a few days, get in touch with your MS nurse or neuro. The pain you have could just be a bit of strain and nothing to worry about 🙂 Hope this helps! Emma x
I was Dx with MS in 2005 when my foot stuck out at a strange angle but I could still walk fine. A few years before that they suspected I had ON when I was in my 2nd trimester but didn't do an MRI as I was pregnant and at that time they still weren't sure it was safe for the fetus and ear development. I had a strange blind spot in my lower right quadrant of vision in the shape of a kidney bean. It didn't move and had strange diagonal stripes through it. It resolved after two months when I moved into my 3rd trimester. I still had find vision to work and drive through that time but there was the annoying spot without vision. Recently I went to some of the best Neuros in the US at the Mayo hospital in Rochester Mn USA. When I described this symptom they said that didn't sound like ON at all but rather an Optical Migraine. I do not get migraine headaches but my mom did and there was no pain associated with the episodes. I occasionally have a blinking shape (like the letter C) in my vision with bands in it. It is quite small and doesn't affect overall vision. There is no pain associated with it or headache. I am thinking these are actually optical migraines and have resolved quite quickly, within an hour. Right now I am having a case of ON in my left eye. They are big blotchy spots in my vision and my vision is overall blurry in that eye. It is fine in my right and I continue to operate quite fine with the one eye clear. I have no pain associated with it or headache thankfully. It sounds like most people do. Any impact on my walking or vision my Neuro takes very seriously and sends me in for an MRI as soon as I report it to see if there is an active lesion. If there is he prescribes me 1gr of steroid per day giving through IV. I can set up a home infusion so I just hook the little steroid ball to the IV each day and let it feed in. I start a 3 day round of this on Monday. This will be the 4th time in 15 years I've had this done. That is how it is typically handled in the US from what I understand. My balance and gait are also affected by MS (foot drop on right side) and I will have a Neuro Psych eval at Mayo in a couple of weeks...we'll see what they can measure in cognitive impact and if they measure brain volume loss. Should be interesting. It will likely resolve and hopefully quickly. In the US they pump you up with steroids for a few days if there is visible activity in your MRI. Doesn't sound like they follow the same protocol everywhere but it resolves my issues within a couple of days and I still feel and sleep fine. It doesn't sound like it goes as well from others if you check other posts on Steroids by using the tags above or the magnifying glass- Good luck hope it resolves soon for you-