@AndyTurner

Last reply

AndyTurner

Flare up

I been having double vision, blurred vision and pain behind left eye. Managed to get a cancelation at opticians. Optical neurtis has popped its head up again. Now have to wait for appointment at the eye pavilion. This is the sexond time this year.

Stumbler

@Stumbler

@andyturner , contact your MS Nurse as a matter of urgency to discuss this. Visual problems of this nature are usually treated with Steroids, to expedite the resolution.

cheegum

@cheegum

Shouldn't you be going into emerg? Get some pred in your system?

AndyTurner

@AndyTurner

Phoned MS nurse on call. Still waiting for call back. Lost count of how many flare ups I've had. And have been told by the neuro at the eye pavilion and by consultant, before. They have clinically proven steroids don't work.

Stumbler

@Stumbler

@andyturner , Steroids do not make a difference to the overall outcome of a relapse, but they do make that outcome happen quicker.

AndyTurner

@AndyTurner

I not going to take steroids. I just going to ride the wave. I'm on gabapentin, which helps a bit.

AndyTurner

@AndyTurner

Last time neuro said steroids don't work on optical neurtis.

AndyTurner

@AndyTurner

I will.

Stumbler

@Stumbler

@andyturner , I'd be concerned if your Neuro suggested that steroids don't work on Optic Neuritis. The following link is part of the NICE guidance for managing MS:- https://www.nice.org.uk/guidance/CG186/chapter/1-Recommendations#relapse-and-exacerbation Point 1.7.7 to 1.7.14 covers the use of steroids. Now, a relapse is an inflammation on the Central Nervous System (CNS). Steroids initially address that inflammation, then assist in the recovery. I don't think the steroids are intelligent enough to differentiate the optic nerve from the rest of the CNS.............

AndyTurner

@AndyTurner

I'm going to the western general hospital. Pain is getting to sharp.

Lightning87

@Lightning87

Hope you are okay Andy let us know how you get on when you are feeling better x

AndyTurner

@AndyTurner

State of play at the moment. - Went to Western General _ Got sent away to get a referral off my GP - Dropped my e cigarette and broke it. - Totally stressed out. - Went into my GP without an appointment. Explained situation to receptionist. - Met with GP. She phoned around trying to get hold of a neurologist. - Half an hour later given a 5 day prescription for steroids. - Went to chemist. Not in stock. - They phone all the Boots in the surrounding area. - They don't have them. - Have to wait till 1pm tomorrow. Until I get them. What a day. In bed now, knackered. With sore eyes blurred vision. And a new e cigarette. Happy Friday the 13th to me. NOT

Stumbler

@Stumbler

@andyturner , that's a day and a half. You seem to have been let down by too many NHS personnel, both at the Hospital, GPs and you MS Support team. I'm not surprised the High Street chemists haven't got the Steroids in stock. It's an exceptionally high dosage. The Hospital pharmacy is usually the best bet, but they probably wouldn't accept a GP's script. You could try enlisting the assistance of the Patients Advice and Liaison Service (PALS) at your hospital, as you do seem to have been let down.

grandma

@grandma

Do you think it's significant that my nearly exs (just waiting for the paperwork) birthday was yesterday! The old jokes about Friday 13th are codswallop but it doesn't stop us feeling awful when you have a day like that, today (it's after midnight so Friday is finished) and tomorrow will be better, promise🙏🏻

AndyTurner

@AndyTurner

Thank you everyone for the support. I get my steroids today.

Lightning87

@Lightning87

Glad you got your steroids in the end and hopefully they will start to make you feel better quickly. Sounds like you had a very stressful day. My mirror broke in my bathroom yesterday, looks like I’m doomed for the next 7 years at least 😂 Hope you’re okay today x

AndyTurner

@AndyTurner

500mg morning 500mg afternoon.

AndyTurner

@AndyTurner

First 500mg of medrone just taken.

AndyTurner

@AndyTurner

Have had the symptoms for two/three weeks. So I think it's time.

grandma

@grandma

Hi Andy, watching the final this afternoon? Ideal time to lie on the sofa for a couple of hours. Beer might be involved. Have a nice time😍

AndyTurner

@AndyTurner

I would love too. But don't drink. And you know this is the first world cup I have only watched one game. Just going to chill and think about new designs for my Silverwork.

AndyTurner

@AndyTurner

Anyway taking 1000mg of steroids a day and all the other meds I'm on, think it would be a suicide mission. Eyesight is still blurry,

Stumbler

@Stumbler

@andyturner , Steroids aren't an instant fix. Your problems are caused by an inflammation on the optic nerve. The Steroids will primarily address the inflammation and then will work with your body to help you recover. The Steroids will be helping this recovery over the following 6-8 weeks. But, you have to allow your body to recover, by resting and relaxing.

Pigecan

@Pigecan

Hi @andyturner, just sending you some good wishes and hopes for a pain free day. As people post their troubles and solutions, we all learn something.