@Anawith1n

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Anawith1n

Rejected for stem cell treatment

This lady got rejected in Australia to do stem cell cause she is 47 years old. Sorry her gylenya wasn't doing the job anymore. Now that's do disappointing. I HAVE MS NOW FOR nearly 17 years. Been on betaferon 1 month Also gylenya for 1 year Copaxone 1 month and half Steroids tablets 1 week and half. Now nada ( nothing) I'm going read more about the stem cell but I'm 47 so maybe it's too freakin late. http://m.canberratimes.com.au/act-news/canberra-life/canberra-mother-to-head-overseas-for-stem-cell-therapy-to-avoid-life-in-wheelchair-20160108-gm22kk.html

Stumbler

@Stumbler

I read that newspaper report, @anawith1n . Was it a case of refusal of treatment or is it that stem cell treatment isn't yet available in Australia? The latter was my interpretation.

Anawith1n

@Anawith1n

Yes it's available but this lady was told that she is too old 45 years old is the age they consider. I'm bloody 47 too.

cameron

@cameron

Why aren't they offering you lemtrada?

reddivine

@reddivine

i just saw the programme on Panorama (in the UK). Its a trial taking place in shieffield, aussie land, sao paulo and somewhere else... Is not going to be over for 2 years and long way off being offered. Not surprised @ the age thing. did you notice of the four on the prog, they were mostly newly diagnosed, and youngish. Its very costly and they ain't gonna waste money on us ole codgers! Even the guy who had been diagnosed for 9 years (and therefore suffered most damage) found a long road to recovery. I've been diagnosed 20 years and in my 50's so am in no illusion - I would not be offered it either. The way the NHS is going very bloody few will be!

cameron

@cameron

@reddivine, don't know if this makes any difference but on the thread about the Panorama programme on the Barts Research site, it explains the NHS position. If I've read it right, it is available on the NHS. It'll not be offered to me, though - among the exclusion criteria are that you have to have failed a third-line DMD. Upper age limit: 65.

Anawith1n

@Anawith1n

Gee wizz I just saw how many NEWLY DIAGNOSED MS's out there, hey Welcome! U can ask us oldies anything we r here to help u guys, we just wished this was around back in the days. We had nobody. Now with this site u can get all the answers.

reddivine

@reddivine

In the prog, they said it was a trial, in Sheffield. Don't think its generally available. Won't be till they have done the trial and studied the results. Plus the procedure was pretty gruelling. They would want to make sure you could cope with chemo first, i reckon. I've been diagnosed 20 yrs so they'd reckon us oldies a lost cause mate!

cameron

@cameron

Look at Barts blog Tuesday 19 January. Definitely available but as a treatment of last resort, no good for progressive disease.