Lemtrada and how to get rid of tremor
Hi everyone,
I have two questions
1 - Have any of you experienced tremor? they are like involuntary movement of the head, arms, legs, fingers, almost every where in the body. Happening almost every 2 to 3 minutes. What did you do to get rid of them?
2 - I am yet to see my neuro, the appointment was set 3 and a half MONTHS after my diagnoses but go figure. It's almost been 2 months now and I haven't been offered anything!
I have a particular interest in taking the harder drugs after finding out I have several poor prognostic factors. Especially Lemtrada or even Tysabri. But my nurse indicated that they might take the softy soft approach and start me with the softer ones and see how I go for the next few years. He was talking to me about beta-interferon in the year 2015. What did you do to convince your neuro that you want to be on the more efficacious drugs?
@ahmed , the bottom line is that MS is your condition, affecting your body. So, it should be your choice of treatment. Do your homework and make yourself aware of the facts so that you can have a meaningful discussion with your Neuro. Be assertive, but always be polite. They will make their recommendations, but it's your body that's taking the treatment!
I certainly will but I wanted to know about the technicalities within the NHS. At the end of the day these are costly drugs, so the neuro has to tick the boxes for his bosses. I f'n had lesions in my cerebellum and the stem