Newly diagnosed - scared to start Tecfidera
I have postponed my treatment of Tecfidera for around 10 months now. I have always put excuses in my way like 'It's not the right time' and 'I can't afford time off work if I'm not well with it' but really, I think I am just scared to start it. I thought I was coping well with a new diagnosis but really,I have postponed my treatment of Tecfidera for around 10 months now. I have always put excuses in my way like 'It's not the right time' and 'I can't afford time off work if I'm not well with it' but really, I think I am just scared to start it. I thought I was coping well with a new diagnosis but really, I think I have just been avoiding it.
I am just off the phone with my MS nurse and I know it's time to start it now. Just looking for some positive experiences with Tecfidera to try and make me feel better. I have always dreaded side effects (especially gastrointestinal ones).
It really is a shit disease isn't it.
@Abz671 Hi I've been using it for 5 years and have very little side effects but there manageable. But have had no evidence of disease activity on MRI which is what you want to hear.
Agree with Lowlander. I think halting/ slowing down progression is the ONLY priority, cos mate, its no fun when you start rolling down the hill… damage is irreversible. Best take that head out of the sand and just bite the bullet. Trust me I understand where you’re coming from, i did the exact thing as you. Best strategy for MS is hit it hard and early and supplement it with diet and exercise. Regular exercise is CRITICAL.