Hi- Glad you found ShiftMS, there are a lot of people here that can relate to being in Limboland ;-) I had several symptoms over the years that were explained as something else before I had a strange enough symptom that I was referred to a Neuro that was, thankfully, an MS expert that recognized the signs and promptly set me up for an MRI. That was over 15 years ago. Now it is so much easier to research and learn via the internet and one of my favorite sites to do this is Dr Boster's You Tube Channel. He has hundreds of videos and you can find the answers to many questions there. I recently watched one about understanding your MRIs and where lesions were and what symptoms they would cause that was amazingly accurate for me...I have lumbar lesions in just the right spot to explain the footdrop I have. A good initial video is his diagnosis one and you can hunt around from there- https://www.youtube.com/watch?v=0csvVXatlFo There is also great stuff out on the Barts blog and resources in the UK. If nothing else this Covid-19 mess has made us more aware of our global connectiveness and resources available to us. My impact is primarily in my gait and legs so we are probably impacted in different places and different ways but I do know that in the interview that Seb had with "Paleo Boss Lady" she said she was impacted more in her hands. Those are other good You Tube sites to check out - Life of Seb and Paleo Boss. Terry Wahl also has some good material out there on diet and Estim work. But- glad you found Shift MS- I'm sure you will have other people spot your post with ideas and experiences you can relate to ;-)

Hi @aaron_paul, great that you've found this site. We all appreciate what it's like to be in limboland, it's just the worst. And obviously, all appointments, MRIs etc are on the back burner due to Covid. So, I am no expert at all. But I can tell you that there's no rhyme or reason to MS. Some people have countless lesions with little symptoms, and some have few lesions are significantly affected. I no that doesn't help you, but don't assume that if you are diagnosed that it will be Primary Progressive. Or otherwise. I have RRMS but, when I had my first relapse that led to diagnosis, the effects lasted months and, to be honest, have never fully gone. It sound cliché to say 'everyone is different' but that's so true! At least you are in the system now, which is great. Most of us receive confirmed diagnosis following a lumbar puncture, so don't be surprised it this is the case for you. Why don't you let us know when you've had the results? Look after yourself. Stay clear of Google; it might not be MS, but if you are going to dig around, stick to sites like this, MS Society or MS Trust. all the best!